Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

  • Hi Eileen,how are you hope your well.yeah thought it was about time i put a face to the name!

    so your birthsigns cancer aswell.had my chemo on friday feeling a bit numb today if that makes sence.

    not sleeping very well at all.im lucky if i get 3hrs a night! so its off downstairs to watch tv till the birds

    start singing!.lovely day today hope its the same where you are.take care.

    best wishes sharon.xx

  • Hi Eileen,

    We were never told about drinking lots of water, but of course it's always a good thing to do. Our daughter always tells us we don't drink enough of it, but then she's always busting for a pee!

    Apparently, alchohol is ok with Ovarian Cancer according to http://www.sciencedaily.com/releases/2008/01/080122101945.htm  Thank goodness for that eh?!

    John

    PS - Strange that you're all Cancerians! Mary feels her cancer was fate!

  • Hi Everyone,

    Hope you are all well.

    Sharon - I hope you are doing ok after your Chemo. Glad the cold cap was ok for you. I have lost all my hair now, just before 2nd cycle, which I had yesterday. Wearing my scarves and bandanas and feel great about it! I don't feel people looking or staring at me, and I'm carrying on at the gym as normal and loving it. Went to aqua aerobics today with a little swimming hat on, no one bothered! And my boyfriens has taken it far better than expected so it's made us much closer.

    John - How's Mary getting on? Hope she's still feeling good. And how are you?

    And hope you other ladies are getting on ok x

    I am waiting to see if I feel bad again after this cycle, but now I know what to expect I'm ready for it this time!

    Love to you all,

    Sarah x

  • Hi Sarah, not feeling my best at the minute.had the lovely side affects! stuck to the loo for a day!

    really tired now my feet are killing me and im really not sleeping.glad you feel ok now about the scalfs

    and bandanas guess i wont be far behind you!.thanks for telling me about those bandanas online some

    really trendy ones! glad your boyfriend is feeling better about things now my partner feels the same didnt

    cope very well when we went to collect my wig its a big shock for us all.

    take care  sharon xx

  • Sharon, I'm sorry you haven't been too good, My side effects only lasted 3-4 days then the last two weeks I was absolutley fine doing normal things. Looking forward to a couple of glasses of wine next week, when I've finished my steroids and stuff!!

    Take care & no probs about the info, I've got loads of really cute bananas & zandanas!

    Hope you feel better soon x

    Sarah.

  • Hi Sarah,

    Good to hear from you. I'm really surprised at how fast you lost your hair! Mary is into her 3rd cycle now and has lost about half of it. I would be interested to know how your cycles are scheduled and how long the treatments last. Mary is on the new dose-dense regimen, which means that she has a lower dose of Taxol, but goes every week (about an hour), but Carbo is given 3 weekly (about 30 mins) at the start of each cycle. I know the dose is calculated on height and weight etc, so differs a bit for everyone. I just wondered if spreading out the Taxol doses may be helping to reduce some of the side effects.

    @Sharon - sorry to hear you're still not feeling great, hope things improve soon for you. I see that you have been through this before, what happened last time? did you have any surgery? Is your treatment regimen the same as last time? I'm sorry that you're having to go through all of this again. Apologies if you have already explained it all before I got here.

    Best wishes to everyone,

    John

    PS - I'm glad it's not just us on the vino!

  • Hi John,Mary.still feel under the weather today.slept for hours this afternoon!'yeah i had surgery 09.

    went in to have total hysterectomy because i had ct scan and there was somthing showing on my

    ovaries which they said was a cyst! wasnt till after the op that we knew what is was a shock i can tell you.

    so then i had 6 cycles of carbo.[didnt feel to bad with that.] than in may last year after routine check up and

    ct scan there was a gremlin showing!.so they have been keeping a eye on me since then had another scan jan.

    not changed since the last one.but they decided to start me on carbo/taxol this time.didnt have op at hospital

    im at now had loads of problemsat previous one.thats why we moved. my oncoligist now seems to think that theres

    a chance somthing was left behind after the surgery hence thats why im back to square one!

    best wishes sharon.xx

  • Hi Sharon,

    Thanks for your reply, I'm going to waffle a bit more now, I know some of you ladies are feeling rough at the moment, so just ignore me until you feel better.

    It sounds similar to what happened to Mary, she was diagnosed with a large ovarian cyst, we thought it would just be surgery to remove it. When we returned to the consultant after a CT scan and blood test, we sat there shell shocked when in 5 minutes he told us what they had found, and that he recommended full pelvic clearance and splenectomy! As it turned out, the histolgy showed that the lesions in the spleen were benign, but they couldn't take any chances. I still can't believe this is all happening, it feels a bit surreal.

    Mary had an hour of Taxol today and was fine apart from the usual tiredness. Then I made her a lamb curry followed by ice cream, an hour later she was in the loo bringing it all up! First time she's felt really sick, I think the curry was a bit greasy for her, she's always had a sensitive tummy.

    Going to a party on sat, so hopefully she'll feel better by then.

    Best wishes,

    John

  • Hi John

    Bless her heart, I couldn't face curry with chemo so ended up with a curry free 4-5 months Get the impression that the Taxol spead into small doses has a lot less side effects than once every 3 weeks. You both sound like your coping with it all, is Mary glad she has the Hickman line now?

    Sharon, hope you feel better soon, the tiredness is accumaltive and a total pain! makes me feel like the TV ad - busy doing nothing  its early stages for both you and Mary but you'll get there!

    Eileen, dot and all the others hope your keeping well and no news is good news.

    Have my 3 monthly check tom but feel good (better than first time round) so am hoping it'll stay away longer this time! came back a week after the appoinment last time so fingers crossed............. again!

    Take care

    Love to all

    Jackie xxxx

  • Hi John & Mary,

    Well John sorry to hear Mary was sick after your curry Better change the chef ha ha ( only kidding ) Prob was the lamb and they told me to stay away from spicy food. I too have a dicky tummy not as in being sick but rather bowel ( sorry too much info ) Anywa hope you are ok for party I couldn't have even thought about a party when I was on the chemo...

    Jackie lovely to see you back again, you sound in good spirits hope you continue to keep well.

    I am still so tired at night and have to go to bed about 10pm but I am doing more in the daytime and getting up early....

    Rose where are you ? hope everything is ok with you

    Dot I send you xxxxxxx and hugs...

    Sharon, Sara and anyone I have left out keep smiling....

          Love Eileen xxxx