Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • Hi Redlizzie

    I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

    The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

    Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

    I would be interested in hearing about plans for followup when you get that far.

    Best of luck

    Jackie

  • Jackie,

    I am worried about you as I have not heard anything from you and the other Ladies..xxxx

  • Hi Rose,

    just remembered you asked about my chemo, I was on  Paclitaxel and Carboplatin.

    Dot xxx

  • Hi Rose, Dot, Eileen and jackie and anyone ive forgot! hope your all well im not to bad at present.

    just in the process of changing to another hospital  not very happy with my local one  had a few problems.

    so looking forward to moving due to have another ct scan end of jan to see whats goin on!.

    anyway keep positive ladies! speak soon. and rose i wish i could loose weight i went up 2 dress sizes.

    with my treatment still tryin to move it! lots of love to you all xxxxx [my daughter is gonna put my photo

    on for me so you can see who your talking to.]

  • Hi Sharon,

    Lovely to hear from you, I hope your next Hospital is better than the first one.

    Everyone seems to be trying yo lose weight or put it on. I want another 1/2 stone on and get to 10 1/2 as I am 5ft 7 . I want it on my face but it never works like that. I also would like a face lift ha ha but hey ho we are who we are and as long as we are free from this illness we are lucky....

    Keep us informed with your treatment and Happy New Year ..

      Love Eileen. xxxxx

  • Hi Sharon it is good to see you post. Sorry you are having problems with your hospital, I had a problem with mine too but got it sorted eventually, not something you need!!

    We all need to stay positive that is for sure, it won't be long now for your ctscan, all will be good I hope!!

    Dot xxxxxxxx

  • Hi Eileen, i do hope hope so my son was in there last year and they really looked after him

    so i think il be ok.its not so close as my local but i feel happier with the move dont know if you

    would see it on the news im your area but my locals always on there! lots of complaints not good.

    take care. love sharon. xxx

  • Hi Ladies

    Hope the lack of activity on this thread means things are going well and your all getting back to 'normal'.

    Thinking of you all on a regular basis!

    Lots of love


    Jackie

  • Hi Ladies, just to let you know im still in the land of the living!.hope your all well ive now changed hospitals

    went for my first visit last week so far so good.got to go back in 2weeks to discuss treatment ie surgery or

    more chemo. [little gremlin showing on my ct scan!] good news was my blood counts dropping but

    slowly.anyway l will keep you posted.love to you all. sharon[julygirl58] xxxxx

  • Hi Jackie good to see you post, I have been waiting for tests to come back for a pain I had in my back, my doc has suggested antibiotics as she thinks all the rest has been attended to by the hospital. Apart from that I feel fine lol.

    Eileen I hope you are well, not heard from you for ages, thinking of you too Rose.

    Hugs to all xxxxx

  • Hi Sharon, glad you have sorted out the hospital situation. Hopefully they can sort out the gremlin for you without too much worry, let us know how you got on. Blood count going down is great, even if it is slow

    Hugs Dot xxxxxxxx

  • Hi Dot, hope alls well with you ive got to go to hospital thursday t see what they have decided to do

    ie.surgary or some more chemo dont really fancy surgery again if im honest

    ill keep you posted.take care sharonxxx

Reply Children
  • Hi ladies just to say pleased your all ok

    I am going back to work tommorrow on a phazed return.Got my check up 16th feb fingers crossed all ok.

    Still not able to do much ie lifting and have trouble with my hip but have an xray on monday to see if its anything or not.Good luck to you all

    Best wishes Liz xx 

  • Hi everyone,

    like Jackie, I am hoping you are all getting on with your lives and doing good.

    Sharon how did you get on at the hospital, have they made any decisions yet?

    I have to be honest and say I wouldn't want any more surgery or chemo either, but we have to think about what is best for us.

    Dot xx

  • Hi Liz,

    Good luck with work, I will keep my fingers crossed for you too on the 16th and hope all will be well with you.

    It seems never ending, but try to stay strong

    Hugs Dot

  • Hi Ladies,

    Sorry I have not been on for a while. Anyway I went to see my Dr last Wednesday and he was pleased with me. I have to go back every 3 months now for blood tests. I am beginning to feel better everyday and I am so glad the chemo has finished as it really floored me. Jackie, Dot, Rose, Sharon, Liz, and if I forgot anyone sorry....I hope we all keep in touch still and we continue to keep healthy..

    Love always Eileen. xxxxxxxx

  • Good luck tomorrow,hope everything goes well for you.

    Hi to everyone,things very quiet which I hope means everyone is OK.Roll on the warmer weather and we will all feel better then.

    Rose xxx

  • Thanks Rose, im feeling a little unsettled today like i said dont fancy chemo or surgery again

    but what must be must be. ive got to be there for 12 so il let you know how i get on when im back.

    thanks for wishing me good luck it really helps.xx

  • hi all.

    hope everyone remains well. I feel better this time round which hopefully means the 2nd lot of chemo was more effective than the first, one can but hope! am picking up colds like they are going out of fashion, on the 3rd one since the new year but otherwise feeling really good, legs working and arms not to bad, even done a load of weeding down the allotment!

    Good luck for tom julygirl, I'm thinking this is the second time as it was for me, I was suprised that I found it more intimidating than the first time, thought it would be better as i knew what to except but didn't work that way so can well understand how your feeling. Let us know how you get on

    All the best

    Jackie

    xxx

  • Hi Rose,Eileen.Jackie.and all you other lovely ladies out there.been to see new oncoligist today

    seems very nice! news is ive got to have chemo again having he first one in 3 weeks time.

    hairs going this time! so this is new for me didnt happen last time!.feel a litle numb about it at

    the minute.but what must be must be, speak to you all soon big hugs sharon[julygirl58] xxxx

  • So sorry Sharon.Take time to get your head round this ,thump a few cushions and throw a few things.Do you know which chemo you will have?

    Loads of good wishes for you

    Rose xxx

  • Hi Sharon, at least you now know! Hate the hair loss, know its ridiculous but hate it anyway . I've been through my second lot of chemo and am now out the other side feeling better than ever, so stay calm and try and fill the next 3 weeks with things you like doing if you can! I spent my 3 weeks on holiday, I explored lots of local places I didn't even know existed. I struggled with walking but did it anyway cos it was what I wanted, I went out to lunch somewhere new everyday and really enjoyed myself. It kept me going once the chemo started but I have to be honest I found the chemo psychologically second time round, though physically it was a lot easier! obviously now am really glad I had it, just spent the day walking which I haven't been able to do for the last couple of years (weird symptoms but that's me all over lol)

    Chin up you can do it

    Best wishes

    Jackie

    XXX