I was diagnosed with early ovarian cancer four weeks ago following a total hysterectomy, there were tumours on both ovaries, I have an appointment for a kidney function test and another ct scan next Friday, if everything is ok I start taxolcarbo chemotherapy after that. I was told there will be six sessions with 3 weeks rest in between.

I do hope I am posting this in the right place, I am concerned about the chemo and hope to learn more through this forum

Dot

Hi Dot

Welcome to the site although it would be nice if you did not have to be here.

The waiting is always the worst part.Once you have your plan and things are underway it is easier to understand.I had breast cancer so can not advise you about your treatment but would like to wish you the very best of luck.Do keep coming on here for us to support you .good luck

Rose xxx

Thanks Eillen. had a phone call this morning got ct scan saturday morning.

just wont to know whats going on thanks again sharon xxxx

Hi Eileen,

Glad you managed to move house and get settled before going in,you will be glad of the rest !!

I will try to visit if bloods are OK.What is your surname and how long are you in for?I was in ward 12 for a few hours on Sunday as i came out in a rash on face and neck.Turned out to be an allergy,probably to the woolen poloneck jumper that I wore the day before ,thankfully not my tablets.

Hope you dont get too stressed (easy to say ) and all the luck in the world for next week,we will all be thinking of you and cant wait to see your next post on here.

Good luck

Rose xxx

Hi Eileen, hope all goes well for you il be thinking of you

lots of love and big hugs sharon xxx

Hi ladies

Eileen good luck with the op next week, hope you've managed to settle in your new home.

Dot - hope everything is still going well, not like you not to post for a few days!

Sharon - yes a bit confused, you need to know what problems the surgery could have before you can weight things up. Second scan is a tad confusing unless they are extending the area they are looking at. Obviously you also need to know what they have seen, you suspect its the cancer back and I suspect your right but that in itself don't mean much, where (exactly) is it, how big/extensive, what area/organ involved, advantages/disadvantages of having surgery, how well would chemo do alone, would surgery be followed by chemo.................... think I'd better stop! Sorry but you cannot make an informed choice without these answers, yes the oncologist and the surgeon can give you an opinion on what action they would take but that don't mean you understand where they are coming from and thats important for you to be 'happy' with the decision you make. Do you have a follow up app with anybody after the scan?

Rose - sorry to hear you were admitted but glad it was 'only' an allergy and hopefully easily sorted.

As for me seem to be getting away with the chemo clot wise............... fingers still tightly crossed! 4 down and only 2 to go :D another month and I'll be done!!!!!!!!!!

Keep finding the postive and enjoy everything you do

Love to all

Jackie xxx

Hi jackie, to right just want to know .hope i get better answers from the scan on saturday.

my consultant said the surgeon wont operate because it could cause complications.

i.e my other organs. just wont to get things sorted.oncologist wants a second opinion thats

why im having another c t scan saturday morning il keep you updated!.

best wishes sharon xx

Hi Sharon,

Hope your scan was OK yesterday.

Jackie,hope you are managing better now,sore eyes are a real nuisance.

Dot,how are you.We worry when you are quiet,hope you are Ok.

Eileen,hope they are treating you well at Singleton

Hope you all have a good weekend

Rose xxxx

Hi everyone

I picked up a nasty cold and it wiped me off my feet lol, still got a tight chest but getting there. Went ahead and had chemo on Friday no major side effects, which is lovely.

Eileen I will be thinking of you, finally got to that op at long last.

thanks all for thinking about me.

Sharon hope you get more information this time, ask lots of questions

Dot xxxx

Afternoon ladies, hope your all keeping well.ct scan on saturday went ok.

just hope they have the results back this time when i go on the 20th.

speak soon BIG HUGS to you all sharon xxxxxx

Hi Ladies

Don't think this thread has ever been so quite so I hope you are all well!

Dot - hope the cold has gone but am worried as no posts.....................

Eileen - hope your on the way to recovery and not worried as know you can't post!

Sharon - glad the scan went ok but it seems a long time to the 20th,

I'm post chemo and at the bad bit but on the whole doing ok. Eyes still leaking on and off, more on than off but they're not flooding so its more comfortable.

Keep in touch

Love to all

Jackie

xxxx

Hi guys, you all seem to bow what you are talking about in regards to ovarian cancer so I was wondering if anyone could tell me what the next steps would be.

So far I have had tumour marker blood tests and ultrasound internal and external. Am now waiting for appointment to see specialist gynaecologist and would like to know what to expect them to do as my hospital is a bit crap!! Don't want them to tell me one thing and they should really be doing something else

Any advise would be greatly appreciated

Sue

Hi guys, you all seem to bow what you are talking about in regards to ovarian cancer so I was wondering if anyone could tell me what the next steps would be.

So far I have had tumour marker blood tests and ultrasound internal and external. Am now waiting for appointment to see specialist gynaecologist and would like to know what to expect them to do as my hospital is a bit crap!! Don't want them to tell me one thing and they should really be doing something else

Any advise would be greatly appreciated

Sue

Hi Sue,

glad to see you posted but sorry you have to be here.

You seem to be on track with your Doctors, I had the ultrasound etc then met with the onco/gynaecologist. I was sent for a ctscan which gives them a better idea of what they are looking at. I know it is daunting waiting to see what is going to happen. Not all hospitals follow the same routine, so don't get worried if you don't have the same treatment.

What information have you been given so far from the scans you have had?

Try and stay positive, yes it is hard.......and ask lots of questions when you get to speak with Docs again.

Dot xxxxx

Hi dot, thanks for your reply.

I have been told that it's 5x4x3cm so I suppose its not huge. And that's it! I have received my appointment this morning, it's on Tuesday and they want me to have another ultrasound beforehand.

I guess not long to wait now till they hopefully start sorting me out!

I'll post after my appointment to let u know what they said and what they r gonna do next.

I think its really gonna help me having you guys here as the other half is not very good at this kinda stuff.

Thanks

Sue (duracell)

Sue it is great they are dealing with you so quickly!!

It is hard for our families, they worry about us and it isn't easy for them to deal with, on here we can put our worries and someone is always there to reassure or cheer us up.

Hopefully you will know more on Tuesday, it is always the not knowing that is so frustrating.

Dot xxxxx

hi Ladies and welcome Sue

Glad to hear all are well (ish), great relief to hear from you all! Dot had forgotten you were on weekly doses, PICC got to be easier than cannulas, I couldn't have one because of risk of clotting

G;ad to hear Eileen doing well. Poor Rose you need to teach her what to share and what to keep

Will check in Sue and see whats happening post Tues

Sorry to be brief but light bulb blown and can't be bothered to change it! I thought these new energy saving ones were supposed to last for years.......................

Check in soon

Love to all

Jackie xxx

Ladies I am back,

I am sorry not been in touch before now but I have been quite poorly after the operation. I got an infection last Friday in my Kidney so its put me back again. Rose all I can say about that Hospital is Barbaric ...I have never experienced such poor care in my life. I came out on Monday and its my last day of taking Antibiotics...

I am still full of wind which is painful but I had my staples out yesterday....I am hoping to be up and about properly by Monday, well that is my aim anyway. Not sure why I keep getting infections all the time. The Surgeon said he was pleased with the op and has sent tissue samples to Histology so probably back in a few weeks. I have to start my chemo again soon but will phone them next week now....

I see we have a new lady so Hello to you xxxx Also Rose sorry you picked up that infection ( what are we like )

I will send another message over weekend to you all but Its great to be back... Hi Jackie xxxxx:love:

Hi Sweetheart,

Great to hear from you again .Sorry the hospital was awful,I have never been there apart from the chemo dept,I had my op at Prince Philip in Llanelli and it was fab there.Let us know what happened. Hope the infection has gone.I,m sorry i couldnt visit but I dont think you would want hand foot and mouth on top of it all.when you are better we can meet up in carmarthen.Plenty of TLC and cwtching up on the sofa.Take care and so glad to hear from you .

Hope you other girls are OK.

Rose xxx

Hi Eileen, great to hear from you! You do seem somewhat prone to infections but no idea why. Sorry the care was poor that turns a bad situation into a terrible one. Hate to say it but the best 'cure' for wind pains is to move around and be careful of painkillers they bung you up and therefore make it worse! get up and about nut be careful not to push yourself to far - you will feel very tired, nap when you need to, would suggest you don't stay in bed its bad for the blood and bad for chest infections. Hope your enjoying your new house and are lovely and warm.

Take care

Lots of love

Jackie

xxxxxxx

Hi Jackie & Girls,

I am moving about all the time but find I have good days and bad. I have finished my Antibiotics now so will probably begin to feel better, as for pain not taking anymore from today. I have been opening my bowels everyday so far since coming home but that could be the antibiotic so I am sticking with food that helps you go. I go for a sleep everyday at some point as I get really tired.

Its killing me having to sit around in the house when I could be doing so much but I am pottering about and giving my orders. I sold my House yesterday in Manchester ( large reduction ) but at least that's another less thing to worry about. And it means a good Christmas and hopefully New Year. ( fingers crossed )

I haven't caught up on blog yet but will do so I know where you are all up to .

Love Eileen xxxxxx!www.cancerchat.org.uk/.../love.gif!

Hi Eileen, glad to here your feeling a little better you keep giving the orders out at home! surgery or chemo.

just wont to get sorted out you know.

BIGS HUGS sharon xx

Hi Sharon,

Thanks for your message. I hope you get the news you want on Wednesday.

I am begining to feel a bit better now but the wound is starting to niggle at me ( if you know what I mean ) Can I put any creams on it ? Someone said Arnica or Aloe Vera but not sure, so any tips will be grateful.....

Hi to Dot, Jackie, Rose and new lady.....

Love Eileen xxxx