I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
So sorry to hear thinks are still being difficult for you. Hopefully the chemo will rapidly deal with the problem causing you problems, so fingers crossed they investigate quickly and sort you out so you can get started. Its miserable when you feel ill so hardly suprising your struggling to feel positive. Did they manage to get the stent in? Is the diarrhoea due to the amount of laxatives you had trying to sort the inital problems out? I'm sure your in good hands so just try and hang in there.
it is good to hear from you but I am sad that you are having such a rough time of it. I do hope this will be sorted out quickly for you. The only way to look at all of this, is none of us would have stayed those happy people before our op if we didn't have treatment, it isn't really a good answer and I know you just want to get over all of this, fingers crossed for you. My heart goes out to you.
I take it you have asked for some pain relief/anti nause medication, seems silly asking you that, but I know someone who wouldn't ask for relief.
I will keep you in my thoughts and hope you heal quickly xx
Hi everyone else,
I don't wish to tempt fate... but no obvious side effects yet, in fact I craved cream cakes lol and my husband kindly went out to get some. Stay strong everyone, baby steps for us all
I was afraid you would be concerned that the rest of us would get nervous about your post...please do not worry...I am happy to hear ALL you have, want and need to say, and that goes for all on this chat log...I am hoping everything shrank - there were only 2 nodules left, on my diaphraghm, and I am more than curious about those -they took out 3 tumors when they gutted me (Hee Hee) - and I had some swollen lymph nodes..so keep talking, all!!!!!!!!!!!! Part of my problem, was the death of an aquaitance from lymphoma at age 41 Leaving hubby and boys, 7th grade, 5th grade, and 2nd...just made me think of EVERYTHING and it was all scary!!!!! Am in much better mind-set today..like all of us, hate the wait...am hoping all is well with all of you today, wondering how each one of you is tonight (still today here) if you cannot sleep, write me, I will be checking for notices...HUGS!!! - Becky
Eileen, it is good to hear from you and I am just hoping what Jackie said would make sense to you and give you some comfort, it is confusing when you are getting conflicting reports, I always ask them to spell the words if I don't understand, lol nightmare isn't it!!
I am sure they will sort out what is best for you xxx
Thanks for your reply. Yes, I had the stent put in last wednesday and WOW!! ..... My bowels finally opened after 12 days !! I was disharged the following day. However, I didnt feel 'right' when I got home and was re-admitted yesterday evening. The doctors werent exactly sure what was causing me to feel so unwell so I went to theatre this morning. Apparently they found fluid in the abdominal area and drained off just over two litres. Im a bit 'dumb' about everything thats going on, so not sure how this fluid got there or why. I shall have to ask the docs tomorrow.
Dot - Thanks for your reply too. I have been having endless pain killers. Including regular oral and IM morphine. The oral morphine makes me hallucinate !!! The other night @ 4.15am, I was trying to pick up all my blankets, as I thought they were a tray of roast potatoes - and I was trying to put them in the oven !!! At least it made me giggle when I realised what I was doing !!! A few nights ago, I saw two huge, jet black furry spiders ( the size of space-hoppers) hanging from the ceiling above my bed - good job Im not scared of creepy crawlies !!!
I'm still hoping to start my chemo on tuesday. Fingers crossed.
Love & Hugs to everyone from my hospital bed !! xxxxx
Nice to hear you sounding better! The fluid is called ascities and is part of ovarian cancer, it is normally one of the presenting symptoms though I've never had any! Bet you feel much more comfortable now its been drained and assuming thats what was making you feel so bad, it sounds like chemo as planned on Tues :) . Smiley face cos chemo is what you need to sort the underlying problem which is leading to all the others!
Sorry to hear you have been so poorly but hopefully back on the mend. I am glad you can still send messages from your Hospital bed as well as its a long day & night in those places and you need contact with the outside world. I will be thinking about you and hope your soon home and feeling better.
Take Care Love Eileen. xxx
it is so good to read your last mail, you sound sooooo much better thankfully!!
I had terrible hallucinations, I heard a dog swishing it's tail for two nights running, I even rang my husband at 5am, whispering down the phone to tell him there were weird things going on, I thought the nurse was pushing drugs into me and I didn't want them, when I came to all my lines were pulled out. I totally believed the nurse had done it lol. This part will make you think I am an oddball but what the heck lol....I belong to a group of spiritual people who believe in healing and lots of other weirdo stuff lol, and when I got to talk to them about my op a dear friend told me he came to see me on two nights.... as a dog so he wouldn't frighten me lol.......sounds unbelievable but absolutely true, he calls it astral travelling lol. Wondering why I dare to write this lol, oh well it might make you all laugh even if you doubt what I say......take your pick lol.
Hi everyone else, got the achy legs today, I am up and down like a yoyo, tried just lying there but nothing works as yet. I also had shooting pains where my ovaries etc were but not on my scar, that part seems to have calmed a bit now, I think I have been fortunate so far, it is tolerable. My husband rubbed my bottom lol which helped a lot lol.
Hopefully my nutty rendition of my pals won't put you off me lol, later I might tell you a bit more about myself lol
You know I just Love you all on with all your different stories to tell. I don't think your mad either as I have heard of Astral Projection were you can travel. Sounds scary though what you and Jayne went through. I still have my ovaries' as you know and get really bad shooting pains in mine after the chemo. I always say I wish I could look inside my body and see what's going on.
The restless legs are bad aren't they ? I am dreading them again this week as my 5th Chemo is tomorrow. The Nurse is calling today to take my bloods, I just hope they are low so I can have a weeks grace. What else do you get or feel with the Chemo ? Its interesting that some people sail through with no side effects.
I have found the further I get with it, the more emotional I become and have a weep sometimes over nothing.
Anyway Ladie's another day so hope your all waking up feeling bright and happy.
I woke up drenched in perspiration again, same thing, drop in temp 33.6. I wrapped up and came downstairs before 5am, made a hot drink and slowly my temp came back to normal. Nothing I read says anything about temp drop only if it rises, altough they do mention the shivers which I get, but I think that is the perspiration cooling me down. I find the pains in my pelvic area disturbing, it's as if I had the op again, but have told my self the chemo is after active cells and the healing process is still going on.
The nurse said she would ring me today to tell me what my team thought of the lesions on my liver and lung and the lung disease that the ct scan from the other hospital found. I will wait to hear from her but if she doesn't get back to me later in the day I am ringing her. I am still appalled that I was clinically free and all nodes untouched, yet they found several 5mm-20mm nodes. ugh.
The one thing I did read about was feeling emotional at times, I think this has to be natural with all the ifs and buts of this disease. I understand about not wanting the chemo, you have been on a roller coaster for a while now and need rest fingers crossed.
Hi to everyone else, hope things are going well for you all
