I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Hello ladies I have only just found this chat page and having read the posts can really identify with you all.
My first experience of Cancer was way back in 2001 when I was diagnosed with stage 2C Ovarian. I had a full hysterectomy, removal both ovaries and omentum. I then underwent 6 3 weekly chemotherapy sessions of taxol and carboplatin. It was hard at first when the 3 weekly appointments went to 6 then 12weeks then 6months then yearly. It did get easier as time went on and I knew it was only a phone call away if I had any problems.
I have had a full and active life since until the bombshell in November last when having a few problems going to the loo bowelwise I mentioned it at my yearly checkup. Scan followed confirming a tumour in pelvic area followed by exploratory op in Feb which showed I would need a colostomy. March 10th came and I underwent the op. No colostomy as the tumour was attached to the bowel and bladder and there were signs in the peritineum. It was decided after much discussion whilst I was on the table to repair a hernia which I had developed, take the top off the tumour and drain. I have made a good recovery from the op and am due to have my 4th chemo on 14th July - taxol and carbo again. I have also opted to go on a trial for a new drug so am monitored a little bit more with more frequent follow ups and scans in the next 18 months.
I'm trying to remain positive and it sounds as though you all are.
You sound so as a matter of fact about this whole thing. I hope your Chemo went ok yesterday, and I suppose your full of steroids now so will be buzzing about for a few days. Hello to my other firends, we should think of a name for ourselves. I like you Jackie can't remember who is having what this week. I think you are having the chemo again and not sure if Dot or Kathym are as well. Sorry but I think your brain cells are effected by all this as I can't remember anything....
Anyway good luck to all of you who are having the treatment this week. We should all make a date to meet somewhere when we have finished our treatment and have a good laugh. I am sure we would be thrown out of a place if we got together, but its something to aim for.....
Take Care my Friends.... Eileen.xxxxxxxx
Hi Dot,
Hope the phone call went as you expected. Let us all know what they said....Kathym are you ok as not read anything from you or maybe I have ( brain cells again ) I am feeling better but took 2 weeks to recover this time not sure if chemo still going ahead next week will know tomor, can't wait for it to come as my Daughter is due her Baby in 3 weeks and would love to get up to Manchester to see her..
Take Care Ladie's xxxxxxxxxxxxxx
Spoke to the nurse and mentioned my concerns, about the long wait for chemo, she told me there had been some problems arranging an appointment for me at the hospital requested (hmm I had the kidney and ct scan there) but she has spoken to the Professor I saw at my designated hospital and they have offered to start Friday 23rd there and the rest of the chemo at the hospital near me.
I said all I need is the assurance that the cancer hasn't spread and I will willingly wait the ten days, she said unfortunatly they couldn't give me any assurances on that, so I have opted for Friday, this does not fill me with confidence!! I will be seen a week earlier I just hope everything will be fine.
I am trying to stay positive, but the gremlins are back again
I understand that the gremlins are back but stay postive like you have been. Once the chemo starts it will zap anything that gets in its way. I knew from my first cycle that the tumour was shrinking because I wasn't going to the loo all the time and that was after only 2 weeks after. So once you start it everything will be fine. Glad its put forward now for you. Meant to ask you all anyone on Facebook ?
Love to all especially you Dot xxxxxxxxxxxxxxxxxxxxxx
I have a question for you, do you know how long I will have to wait before my operation ? I know all you ladies had your ops before the chemo but I am wondering about will the surgeon say tomor I have to wait until the chemo is out of me or does it not work like that. Maybe its you can't have the chemo for so long after the op. If you understand that. I am so excited about going that I am thinking all sorts of things...
Also some things I remembered before to tell you all. After my chemo I got very sore underneath ( if you know what I mean ) So I had salt baths which eased it fantastic, plus I got peppermint cordial in and drank it with hot hot water as I got trapped wind, plus terrible heartburn & indigestion so I have omeprazole, now I have a hiatus hernia so it could be because of that so maybe you won't get that. I am just trying to help you all before things take hold. If there is anything else I can think of I will forward.. Hope your feeling good still.
Hello everyone I have not been online over the past few days. Spent yesterday in bed, washed out and achey after Wednesdays chemo. Still a bit achey today but gradually getting better. Hope you manage to get to Manchester for the birth Eileen something to really look forward to. My grandchildren certainly give me a reason to battle on. Hope everyone else is doing alright and getting the treatment and answers they need.
This will they wont they isnt helping but thankfully you have a definite date.Dont let tomorrows worry spoil todays joy.(we should start a thread of how many cliches we have heard since being diagnosed ).The dreaded waiting again !
Dot I'm sure its better to get treatment started not least because of the worry aboout what its going to feel like, its not bad honest but Eileen's right, indigestion is not good (I to am on Lanzopranol but worked better when I only took it post chemo!), taste in mouth is indecribable and tonge sore (burning), nothing tastes right but the worst is even what I can taste disappears as soon as its swollowed!!! By the same token its a small price to pay to beat the cancer.
Eileen, I had 3 doses of chemo then the operation after either 3 or 4 weeks (can't quite remember) and the chemo was supposed to start again 3 weeks later.
Wish this site allowed the posts to be displayed as you responded so you could see whats been said before! Now going to try and copy it to see if I can get round my pathetic memory!
poor you, I only get the odd ulcers but I use Hydroghen peroxide spelling wrong. Its great for mouth ulcers. I also have that yellow stuff to get rid of thrush. I have a basket full of tablets. God its awful isn't it. Bad enough having chemo and then all the side effects after. They don't give you long to get over the chemo then before they operate. I am focusing on Christmas to give me something to look forward to.....
Love to all xxxxxxxxxxxxxx
poor you, I only get the odd ulcers but I use Hydroghen peroxide spelling wrong. Its great for mouth ulcers. I also have that yellow stuff to get rid of thrush. I have a basket full of tablets. God its awful isn't it. Bad enough having chemo and then all the side effects after. They don't give you long to get over the chemo then before they operate. I am focusing on Christmas to give me something to look forward to.....
Love to all xxxxxxxxxxxxxx
