hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
I was diagonised beginning of Dec. I'v had two ops also. One to remove a cyst, the lining of which turned out to be cancerous. Followed by a mx in January. Have just had my 5th of 6 chemos this week, and am too feeling a bit fed up and low, am putting this down to the nice weather we are having and not being able to go out, that and I'm on my low days at moment.
thanks for your reply. im so sorry youre going through it as well but maybe we can help each other. dont know anyone thats got this horrible disease which i am glad about. are you married with kids? sounds like im a week ahead of you in treatment. the most painfull part is my mouth n tongue but i cant walk more than a couple of mins now either. did have infection the week before last chemo though. if i walk more i cant move off the couch for a couple of days. must admit my mind is alert than has been since chemo. am taking anti depressants which has stopped some tears. just dont understand why im finding it so hard now with only 1 chemo left. got radio left n herceptin every 3 weeks til next year but that cant be as bad as chemo! know i lost sight of the fact its meant to be keeping me alive but thats not guarentee is it. hope youre feeling a bit better today n sunshine is cheering you up. lonie xx
Please get some difflam mouthwash for your mouth from either your dr or dentist its brilliant, use it neat for the pain and water it down to use when the pain has gone, its brilliant and really works, please spread the word , had to have two teeth removed before bone treatment could commence and it has helped me so much.
Thank you very much for your advise. But this was a while ago I had problems with my mouth. Luckily my mouth has healed now n I don't have any problems now. As for the difflam, it didn't help me when I had all the ulcers in my mouth or with infection. I just suffered!
Really appreciate your post. Hope you are managing ok. Look forward to hearing from you again.
This has been a rough couple of months for us all... The pain of losing Lou and Rose will never go away.... But we got to make what they taught us count.... and like someone said earlier... we are a team.... WE ARE A FAMILY... we stick together through the bad as well as the good.... We welcome new family member (Welcome to our family Maki... hope your surgery went well) And we share things..... who ever told me about the drug "Clonidine" Thank you so much!!!!!!! I now only have about 5 or 6 hot flushes a day, rather than 5 or 6 every minute..... Colly, if you are getting hot flushes, ask your doctor for these tablets... they are amazing... they have made the unbearable..... bearable..... BIG difference.
I am back to seeing a councillor again.... but that's good because she really does help.... I have an appointment to see a solicitor next week so I can get that waste of space husband of mine out of my life for ever.... and I am going to a friends wedding on saturday..... So things are getting better..... Slowly,... but they ARE getting better.
I knew I had something to tell you all...... a couple of weeks ago we had a red hot weekend, I was only out for a couple of hours...... AND I BURNED!!!!!!!!.... I never burn, I have only burnt twice in my life, and both times I was pregnant..... I was at the doctors the next day and happened to mention this....... but I know I'm not pregnant, i got sterillised 15 years ago...... and she pointed something out to me that I had never thought of...... I burnt when I was pregnant because my hormones were all messed up................ Now I am on the Tamoxifen and the Zolendex injections.... my hormones are all messed up again.... so for the first time in my life i have been out and bought some factor 15 sun tan lotion.... for myself.
I'm finally home. The op is done and I'M BACK. I had rough night but am pleased that this s**t is out. Now it is a stage 2. I am traying not to think about what will happen in two weeks time, traying to think positive. I've meet some lovely people in the hospital and it is amazing to see how brave we all are when the though gets going.
I hope everyone is ok. What have you all been up to?
Hi Caz, I hope you will have wonderful day at your friends wedding.
Glad you are home n op seemed to go well. Hope you recover well n quickly. I have my mother in law down n sometimes it can be hard work! She doesn't stop talking even when I try to write! Bless her. Be in touch soon.
Hi Maki, glad you are home and that the op went well, just take it easy and dont over do things, today my partner and I took my girls to the airport, they are away to Ibiza for 2 weeks, oh to be young again and live life to the full. I was so tired last night, I was in bed for 10pm, my chemo finished in oct and radio in Jan and I still get very tired of an evening and ive no small children to run after, Ive went back to work but have cut my hours down by 7 per week so now i work 9-3 instead of 8.30-4.30, it really helps being home just after 3, I really dont think i could manage full time. Keep up with the positivity. Love to all, hope everyone is doing well xxx
God I dont know how will I take it when my boys decide to go abroad . I think I need to relax a bit, being overprotective is not a good thing.
I will be off work for at least two weeks, I tend to start at 7.30am so I get home around 5ish, still on time to get the dinner ready. At the moment hubby is the one who is doing everything, I am most of the time in pain. The tablets do help but doesn't last long.
I hope you will soon feel your old self. Going trough chemo and radio must be hurendus blow to your body.
I'm so glad that the operation went well..... stage 2 isn't half as bad as it sounds.
Make the most of the next two weeks and get as much rest as possible and try not to worry too much.... I would sugggest you get back in touch with your doctor or your breast nurse as they will be able to help with the pain, and if your medication isn't working as well as it should they will probably want to change it for you, but they dont know it's not working if you dont tell them. please let us know how you get on
Colly... Is it any wonder that you are still tired, your body has been through so much, you had the surgery.... major surgery.... then the chemo.... that is a form of poison (good poison) and then Radiotherapy... that is firing radiation into your body..... it will take a long time to heal from all that..... But the one thing we all tend to forget, (because I know I did) is as well as allowing our bodys to heal..... we have to take the time to allow our minds to heal too....... Having cancer messes with your head.
Now when people ask how i am, i always answer the same way... "I'm still here and I'm still smiling".
I would just like to say a BIG thanks for what you have just written, you have summed up how I feel and I will remember that answer next time someone asks me, as I get a bit fed up with everyone telling me how bloody good I look, without having a clue how I feel. It is true cancer messes with your head, especially when you are trying to get to sleep at night and your body is aching and your mind starts going off on a tangent. My sister has just been down to see me and I said life will never be the same again. I am off for my mammogram tomorrow, perhaps I will feel better after that is over and able to move forward.
I would just like to say a BIG thanks for what you have just written, you have summed up how I feel and I will remember that answer next time someone asks me, as I get a bit fed up with everyone telling me how bloody good I look, without having a clue how I feel. It is true cancer messes with your head, especially when you are trying to get to sleep at night and your body is aching and your mind starts going off on a tangent. My sister has just been down to see me and I said life will never be the same again. I am off for my mammogram tomorrow, perhaps I will feel better after that is over and able to move forward.
