hi i too would like to talk about breast cancer.

hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x

Parents
  • Hi everyone its been a long time since Ive been on AGAIN because the computer has been playing up AGAIN and its made me very  . could do with a new one but this time of year its an expense we can't afford! I've been reading back a few posts but it will take me forever to catch up so wondered if you could all just update me on how you are all doing!! Its lovely to be back in the community I've been on a bit of a rollercoaster last two months and am waiting for the straight jacket to arrive lol!! Seriously does anyone else get really angry!! My anger has been uncontrollable at times with me even smashing a wall and it has really upset me!!

    Please be intouch

    LOTS AND LOTS OF LOVE TO YOU ALL

    Louise

  • Hi Louise

    Sorry to hear you are having problems with your computer and your emotions.I dont get angry because I find it just leaves me feeling worse in the long run,plus my last treatment has damaged my heart so at the moment I cant get stressed.Waiting to see the heart specialist in 2 weeks and when he gives me a magic pill I will be fine.You have been through so much for so long.Can you have some sort of therapy or a massage or reiki treatment to help?Being on here should help to unload so rant away and let us help.No more wall hitting!!!

    Stay strong

    Rose xx

  • Hi Rose

    Thanks so much for replying I need to take a leaf out of your book I think I've got to try to be thankful for evrery day, week, month and hopefully year and get back on the positive vibe. Thanks for helping me see that getting angry doesn,t really help. I'm having a massage next week at a support centre in Sheffield that will help me chill out and I'm just sat looking at all the snow and its making me feel excited for christmas and want it to be really special for the children.

    Now I just want to know if your ok and was really sorry when you wrote about your problems with your heart. Is everything under control? You are an inspiration to me and i am sure everyone on this site. Thanks again for helping me get back on to fighting the fight and I will be thinking of you!!

    Lots of Love

      Louise

  • hi lou lovely to hear from you.

    so whats been happening with you hun making you so angry. i wouldnt fancy my chances with a wall! luckily im with rose n dont do the anger lark, dont think i have throughout all this. whats the point. dont change anything does it. i have stress n thats hard enough to deal with. you carry on looking forward to christmas n making it really special for you n your family.

    im ok, lots to complain about but i wont. theres others here having it harder than me. roll on the end of it!

    let us know what youve been up to.      love leonie xxxxxxxxx

  • hi rose

    i read a message on tonys page n was wondering whats been going on with you? heart problems aswell? feel awful not knowing about you n tony. can you let me know how you are please? its made me so sad to hear you n tony are not well again. i wish you all the best n sending lots of love to a very special lady.

    leonie xxxxxxxxxxxx

  • Hi,

    I am so sorry you're all going through such a bad time. My heart really aches for your ups and downs.

    I have been away for a while due to hospitalisation.

    I suffered a stroke and meningitis and I only just turned 25.

    I am also back to see my breast specialist for my biopsy on 21st as they are concerned I have IBC, and just to top things off just because I've been so ill this year my car and house are being repossessed over the Xmas period. So I'll be homeless with a 6 yr old and was just about ready to try and go back to work. What's the point? I give up.

    Anyway. I wish you all a very good day with rest and get well hugs!

    Kylie xxx

  • Hi Lonie and girls,

    Sorry to worry you.The last treatment has damaged my heart but i am seeing a specialist next week so when he gives me a magic pill I will be fine.The treatment did its job for 8 months but I was glad to finish as it really wore me out at the end.I,m on a different chemo now (tablet again) and I feel much better.Just sort this heart thing and its back on track.I,ve not been through anything like you have you poor thing.

    Grandaughters, first birthday today so have had a lovely day and the snow is OK here so still able to get around.Really looking forward to Christmas,i,m like a big kid Christmas day.Our grandson stayed over last week and helped to put up the decorations.Magic !!

    Hope you are picking up now,you have had such a battle.

    Stay warm and dont worry I,m still fighting on !!!!

    Rose xxx

  • Hi Kylie that's awful about your house, is there nothing that can be done, can the council not home you? Sorry to hear about your other illnesses sometimes it's so unfair. Lou please don't get angry, it really doesn't help, just makes you feel bad, gives you stress and a headache lol. Rose, leonie hi to you too. Lee where are you, Tony, Patricia and Nina nice to see you've added me on face book and runningdrum too, anyone else I've missed, sorry. Speak soon colette x

  • Hi,

    Rose I'm so sorry to hear of your complications, it's the last thing you need. But lovely that the children helped with the decorations, they are magic you're right. My daughter brightens up my day.

    Lou I'm sorry it's making you angry and understand. You poor thing.

    Colly how are you doing? Having a good day? The council are trying but there are too Many people and not enough homes down here! I've tried to pay my arrears and was doing great till I was back in hospital. And to try and evict us just before Christmas is just heartless I think, in my opinion anyway.

    Have any of you ladies heard of IBC? I'm a little concerned, to say the least but taking everything in my stride. Walking and talking again are my main priority!

    Take care x

Reply
  • Hi,

    Rose I'm so sorry to hear of your complications, it's the last thing you need. But lovely that the children helped with the decorations, they are magic you're right. My daughter brightens up my day.

    Lou I'm sorry it's making you angry and understand. You poor thing.

    Colly how are you doing? Having a good day? The council are trying but there are too Many people and not enough homes down here! I've tried to pay my arrears and was doing great till I was back in hospital. And to try and evict us just before Christmas is just heartless I think, in my opinion anyway.

    Have any of you ladies heard of IBC? I'm a little concerned, to say the least but taking everything in my stride. Walking and talking again are my main priority!

    Take care x

Children
  • hi kylie

    i cant believe what youve been through! how can life be that cruel? how are you getting on? was it a bad stroke? as if menigitus wasnt awful enough.

    can i ask where you are? sounds like you will be going into bed n breakfast. just hope for you its after christmas. are your parents close by? hate to think of you in this position with a child. please let us know a bit more on your health n how you manage. what i have in mind is awful.

    take care you poorly little one n i'll keep n eye out for you on here.

    love leonie xxxxx

  • Hi leonie, grumpy and rd,

    I'm doing ok leonie, the car was taken today and it wasn't so bad. Just depressing how illness can do this. My mum is staying with us at the moment to help me with my mobility and just be a mum to help out! The hardest part is my daughter really not knowing what to tell her.

    Grumpy and rd I am going to the council and the lady was lovely and will try and get us temporary accommodation, but my being ill helps us slightly. Only good thing to come from it I guess. I will phone macmillian tomorrow too as I haven't been given a nurse yet a d just ask what they can do to help.

    I just want to say thank you all of you for your kind words and support. Everything just seems surreal!

    I hope you're all having a good day?

    Love Kylie xxx

  • Hi Kylie

    Looks like you are well and truly up to your eyes!

    I have helped my mum get of of a major fix, I have been through the money mill too. There are many an option available. I am no expert but may be able to help a little with sites etc. Feel free to message me. You need to put all your strength into getting better. Drs will agree that a happier head helps towards both feeling better and getting better.

    RD

  • Hello Ladies and Tony

    Hope this finds you all well.

    Well I have some good news for once, I finished my Radiotherapy yesterday so no more daily appointments again yipeeeeeeeeeeeeeee. It was quite funny really as when I walked out from having it the other patients waiting to go in alll started clapping and cheering so of course I took a kirtsy lol. It felt so good I can not explain it, I do not mean to put a downer on anyone who is still having treatment regardless at where they are in it but what a feeling, so good luck to you all, I am still thinking of you all.

    I do have some appointments coming up with my specialists but hey now I can start looking to the future and get my head around everything that has gone on the past 10 months, what with all the surgery, chemo etc and of course my disgusting soon to be ex-husband who decided to have an affair just after my operation. I am told I will now be able to have my reconstruction next September so I can wait for that as I have booked 2 holidays one to Turkey with the girly's and one to Cuba with friends, I will make up for what I missed this year and to top it all I am going out shopping tomorrow to treat myself, oh what bliss.

    Tony how are you doing I have been thinking about you and your family since I read one of your posts, I hope all is going well, please let us know. I know you said you would be in touch but hey you have always been there for us Ladies so now it's our turn again, a big hug and kiss is sent to you and your family

    Colly what have you been up to

    Lonie how are things with you

    Has anyone spoken to or heard from Sara lately as I know she always use to put messages up but I have not seen any from her for a while, I was just wandering how she got on at the doctors when she went back with the infection etc.

    Harryeleri so sorry to read your news I hope when you go and see the specialist it makes you feel better in yourself

    Kylieanne I cannot believe these companies do they have no compassion, I just wish there was something that I could do to help you, I am sure when you speak to Mcmillan or other's they will be able to help you in some way, please let us know how it all goes and I will be thinking of you.

    Well All I better stop now, take care and have a great weekend.

    Littlesis

  • Hi Littlesis

    Good news about your treatment.

    I understand about the clapping! When my partner completed her treatment I had a trophy made. It was the world's first "Thank FEC That's Over Award"

    Enjoy Turkey. We went there soon after treatment. It was a good break.

    Take care

    RD

  • Hi to everyone

    I'v just been catching up on last couple of days posts and want to thank you all for your comments and actually Lonie I think your right there is always someone worse of than yourself so my anger is not going to get the better of me (although sometimes I wonder if the medication has an affect). 

    Kylie I was just wondering if you had sorted anything out and wether macmillan have offered any help. I was just talking to my partner and I know this might seem silly but have you tought of contacting your local MP. It is completely out of order that you are having to go through this when you are suffering with the illnesses you have. I wish there was something I could do to help please let us know how you are geting on.

    Couldany one let me know whats happened to Tony I can't seem to find an up date Is  he ok?

    Littlesis congrats on completing your treatment and you are right to book your hols it will be nice to have something to look forward to. Ididnt realise that about your ex husband how insensitive. I hope you are doing ok you sound like you have alot of good friends.

    Whats the snow like for everyone?! We have had 2 feet on our back garden and the road on the estate has been unpassable we have had to dig ourselves out!!

    Be in touch

    LoveLou

  • Hi littlesis well done now that your treatment is over you can get on and enjoy your life, 2 holidays gives you something to look forward too, love coming your way, Lou, tony has been on recently, he is going through more chemo, but is upbeat aqnd klind as usual, kylie, i really feel for you I hope everything works out and you can be re housed. Ive just fionished my first week of Radio, 5 more to go, roll on 2011 when my treatment is over and I will def be going away somewhere hot in Feb, then onwards and upwards to getting stronger, my hair will be back in, my nails will have grown and i'll feel fab-God willing. Leonie hope youre well, Lee im getting worried about you babes, let me know youre ok, hi to anyone ive missed. Have a fab weekend Col x

  • Hello everyone, I have just been catching up on the news.  It is great to hear that some of us have finished the chemo (my last one was last week) and although we have rads to go and maybe other treatments like herceptin in my case, it is the end of a chapter in our cancer book.  Like me some of you may have thought about the future and are we ever going to be completely free of it, but as Scarlett O'Hara said 'tomorrow is another day and I will worry about that then'.  As for now, Christmas is around the corner, it is a time for giving and sharing with family and friends and being cheerful so that is what I am going to do.  I am feeling very emotional, I think it is all the coping that I have done and now I need to let the relief out.  I have been planning holidays, days out, trips etc for next year and cannot wait to enjoy my life again with my lovely husband who has supported me through this journey.

    I am so sorry to hear about your situation Kylie and hope that something is getting sorted.

    Nina and Lonie my birthday is Jan 17th (52) so I will raise a glass with you on your birthdays.

    Colly I have gone through the change with the night sweats and hot flushes and it all came back when I was having the chemo, so I hope that soon stops.  Afraid alcohol makes it worse, exercise helps a lot though, that is one thing I cannot wait to get back to.  I too have bought some false eyelashes to try.  The hair is growing and I may even brave no wig on a trip out!

    Thanks to you all for the posts you have written on here as it has really helped me get through.

    Love to you all

    Anne

    x

  • Hi Colly

    so sorry I havnt been intouch, went to my friends in kendal for 2 weeks and have just got a puppy! its like having a baby all over again dont seem to have anytime to myself, Im doing well in myself and can start to see signs of my hair coming thru hope you are well and love to everyone have to go... dog is whining again...he he talk soon xxxxxxxxx

  • Hi everyone.

    Lee its lovely to here from you. What sort of puppy have you got and what have you called him/her. My hair has grown back only about a cm allover but I quite like it. You will be amazed how quickly it gets to that stage once its stated to pop throw. Hope your ok!

    Hope you are all okandwonderedif you have all had snow!!!

    Ithink it wouldbe lovely to try to have a get together next year is anyone upfor it?!

    Lots of Love

    Louise