breast cancer has spread,can anyone help me feel less alone?

Hi, I`m 45 and live with my wonderful partner.

Not sure where to start but I guess right at the beginning is the best place.

About 6 weeks ago I went to the Drs after finding a lump in my left breast, she didn`t think it was anything to worry about even though it seemed quite large but organised a mammogram as a routine anyway. She said that they may do an ultrasound and biopsy too. So, 2 weeks later I went along and wasn`t too worried when I had all three.

I was then taken into a room and told immediately that it wasn`t good news and that I had 2 lumps (one in Lymph) and that they were both cancerous! Also that I would have to have a mastectomy, chemotherapy, radiotherapy & prob hormone therapy. I was in complete shock as the literature I had been given said that any results would be given the following week after tests had come back from the lab.

I then went for a chest x-ray, followed a couple of days later by a CT scan and bone scan. I was told I would be having chemotherapy before surgery to shrink the tumour and zap it as quickly a poss. That started 3 weeks ago and I`m due my second tomorrow but just yesterday I saw my oncologist who gave me the results of my bone scan which I had been dreading as I have a disc problem and so have had back pain for many years. He has told me that the cancer has spread to my bones it`s in my back in three places and in my femur.

I am absolutely devastated. In 6 weeks I have gone from a happy, confident, seemingly fit and healthy, carefree person to a complete wreck who looks and feels terrible.

I coped with the first chemo well ~ I only got a bit of indigestion, so I know I should feel grateful but I`m now starting to feel like what`s the point? I am so low but feel very guilty because I don`t want to upset my partner any more but I can`t stop crying.

It feels as though everything is being taken away from me. I don`t have children but after longing for my own horse for years, I have one, but am now told I may not be able to ride for much longer.

My Mum, who I am very close to, was diagnosed with peritoneal cancer two years ago and may not have long left. I have a very supportive sister but feel that I am just burdening her with more problems.

I am very lucky to have my wonderful partner, he has been amazing. I just don`t know how to carry on right now, I can`t seem to feel positive about anything. I`m not even sure it`s sinking in ~ i`m typing this and it doesn`t feel like it`s me I`m talking about. How can it be me?!

It seems like everyone knows someone who has had breast cancer but never to the degree I have. My friends tell me how people they know have had it and come through ok but that just makes me feel worse.

If there is anyone out there who has been through what I am going through I would soooooo appreciate you getting in touch.

I`m sorry its so long but thank you for reading

  • Hi toeveryone

    Kal I'mso sorry to hear ofyour loss and want you to know that I am thinking of you! You are welcome to just read our comments but it is lovely to hear from you. I hope we can continue to bea support and comfort to you.

    Thank you for your comments to me too and yours Wini. I do have the sweats they are awful aren't they I sometimes wake upas though I.v been in the shower!!! They are not quite so bad this week because it is so cold with all the snow!

    Lots and lots of love to everyone

    Louise

  • Kal, so so sorry to hear of your loss, you have written some wonderful things about your mum, telling us all how wonderful she was, when I read it, I thought, Kal is her daughter, so you must have quite a few of your mums amazing traits, take a leaf out of her book and be strong, i believe she is in a wonderful place and peace looking down at you and willing you on and wishing she could tell you to get on with your life and not dwell on your loss. Lots of love Col x

  • Hi everyone! There is such a lot going on here in my home at the moment. We've had a disasterous flood which has wiped out the utility room and kitchen flooring, so very busy pulling up, drying out, insurance claim and on top of that the run up to Christmas. In fact it's been quite busy.

    Tonight, I logged onto my emails and someone had sent me something which has touched my heart folks. So much so, that I hope it is right for me to share with you.

    The following are two links. The first will take you to a little boy's fight to make it to the next Christmas - be warned - it's sad but so lovely, and the second was so uplifting, that it had me singing too! That's an accomlishment in its self as I don't sing well. My hubby says I sound like a wailing cat with its tail trapped!

    http://www.godtube.com/watch/?v=9MJFB1NU

    http://www.youtube.com/watch?v=SXh7JR9oKVE

    Having battled with the darn Christmas tree lights today, only to find they don't work, and then not being able to find its stand, we probably settle for something smaller.

    Anyway folks. I wanted to give you all this message: Keep up the battle, don't give in easily, laugh every day, cherish each other, for there's always someone worse off than you, and yet united in the battle, you are strong!

    God bless you all and have a very, very, happy Christmas and may your future be filled with peace, love and happiness. I'll be here if you need me.

    Wini

  • Kal,

    So sorry for your loss dear friend...we have all been through so much together in the past few months and this is another horrible step in this journey that none of us want to be on...Shents once said that she wished we had met under normal circumstances like in a shop etc and we all agree...However I am so glad I have met all the lovely people on here as we help each other through the most difficult of times.

    I keep wanting to type all the cliches, stay strong, we are he for you etc etc and although they can sometimes sound real empty when said, I mean them with all my heart.

    Visualise yourself on a beach, lying on warm sand all healthy and that will be your place, your sanctuary...

    I give you this beach, shut your eyes and relax!

    http://www.youtube.com/watch?v=j5dRLPieKoE

    Much Love

    Tony xx

  • It's been ages since I was on here and so much has been going on. Just wondered how you all are?

  • Hi Wini

    Its been a very long time for me too!! Your message has prompted me to come back on and catch up with how some of the lovely people who have been such a help to me are doing, so thank you for getting in touch.

    I am very sad to hear that Rose is not well, my love and thoughts go out to you Rose and your family.  She is an inspiration and was so kind and supportive to me at a time when I was very low.

    How are you Wini?  What have you been up to that has kept you so busy?

    Love, Kal

  • Aw hun, please dont feel so alone with this, I am going through the same thing, but I had a bit of a break from the chemo and I have felt well for a couple of weeks and I am beginning to remember how wonderful life is when you feel well, so I have embraced it and enjoyed the last couple of weeks so much that it has made me to really want to fight this beast inside of me and beat it, so that I can enjoy my life again.I hope that you can beat this too. What a fight!

  • Hi, I read your post and I'm very sorry to hear that bc has spread. I was told last week that I have bc. It is devastating and the emotions are all over the place.

    I have posted a comment and had few lovely people replaying and I realised I am not alone.

    I have two boys and a lovely husband who is very positive and is keeping my spirits up. We have to fight this terrible thing, giving up is simply NO option in my book

    I wish you all the best and you are not alone, please feel free and get in touch when you need or want to talk

    Maki x

  • Hi

    if you live within the Manchester area, please join a group that i am trying to start up doing nice things when well, I dont want to use the word positive as i have had it said to me so many times it has become a dirty word to me, so i am using the word nice because it sounds nicer lol . I have bc which has spread to lymph, neck and spine, got my 3 monthly results today, the chemo hasnt shrunk tumors, but they havent grown either so and i had a break so have remembered how good it is to feel well, they given me number 4 of this today to hold it at bay while they set up e new drug with less side effects for me.Hope to hear from you soon, sending you big hugs.

    Hothead xx

  • Hi, I have breast cancer that has mestastised to my neck and back, had radiotherapy on the bones and the pain went within weeks, im having chem and bone therapy now, the chemo that im on has really bad side effects and hasnt shrunk anything so they gave me the last shot of it yesterday and are starting a new on in 4 weeks, because i was bad after the 3rd chemo they gave me a break, and i got well and strong and began to realise how good life is and its not the cancer that makes me ill its the treatment but its scheduled to be over for November so i am looking forward to it like my biggest holiday ever, if im shrunk im going to be very drunk lol, and its going to be one hell of a xmas party. try to focus on the good -well times and do loads of good exciting stuff when you are well hun, it works for me, oh and lots of retail therapy and loads of girly lunches and shopping trips even if its just window shopping, being in the city is the best way to forget that you are ill, theres so many freaky looking people to watch you can wear and look like you want, tried all my hats and wigs out in the city and no-one gives a damn lol. Good luck hun. Keep in touch.

    Hothead   omg I really am hothead a the mo im having a flush lolxxxx