Hi there, Im new to this site I was just reading your story and alot of memories came flooding back to me.I was diagnosed 4yrs ago with breast cancer and bone mets at the same time,I was supposed to get chemo but my oncologist told me as it had spread to my bones I wouldnt be getting chemo at the moment I couldnt describe how I felt other than fear at that moment I thought I was going to die very soon.It took me several weeks to pull myself together I just wanted to see someone else who had the same as me living as I couldnt except what was happening to me.Well here I am 4yrs later and feeling good maybe Ive put a bit of weight on who cares(well to be honest I do I was so small made before this) Im coping now to live with this monster but i dont let it rule my life most of the time I forget Ive got it but my body tells me different.I try and live as best I can and hope that one day they will find a cure.I hope this helps you

Anne

Anne,

Thank you for your positive response.

I'm going to see my Onc on Monday to get results of various scans - so your story has given me a lot of support.

Dotty XX

Hello Kal

My name is Hayley & I am 25. I have incurable breast cancer. I was told oct 2009 that I had it not only in my breast but also in other places which gave me a total of 10 tumours. I had them in my right breast, lymph nodes (1 in my armpit, 1 either side of my neck) 3 in my liver, 1 on the nodes of my liver, 1 in my spleen & 1 by my bowels. That was in oct, when they told me this, I was told that they could not operate on me. My only option was chemo & that is only a 50/50 chance it would do something. my cancer is different to what they have ever seen before. It is very aggresive. If I did not have chemo I was told I had days or 2 weeks at the max.

That was 8 months ago. Now after chemo I am only left with the 1 in my breast! I have so far beaten the odds! I will never be cancer free as it has gone too far for me, but I can live with cancer as they can control it. The chemo has put me in a wheelchair but I hope to be out of it by next year. I am on so many drugs but hey I am still here! I have always said we have to fight for life & I am not going to stop now! My story is much longer but I don't want to offend you or anyone else reading this, so I will leave it a that. Apart from my next scan is on 22nd June so next week. You never stop thinking they are going to find another tumour, because thats how we work. We are only human after all. Hope is a wonderful thing & so is positive mental attitude. I believe that & the chemo is what has got me where I am today.

You are not alone, I have more to tell you if you want to know more please let me know. I have started a charity its called My Lady Humps and all my info about me, my cancer etc is on there. Just type it into google and you will find it, it is also on facebook.

Never give up hope, we all have good days & bad days. My chemo was very hard but it is different for everyone. I have been asked so many times how can I be so strong & positive, I say we have to & they are finding new treatments everyday! One day I believe cancer will be like a cold, one table for so long & we will be free of it. This may not happen in my lifetime but it will one day! If you want to chat please let me know or find me on my website. www.myladyhumps.co.uk

I hope this helps, sending love Hayley x

Im so glad that my story has helped you peoplecan live with breast cancer now for years as the treatment is getting alot better than i used to be .How did you get on with your scans etc,also remember your husband will be feeling afraid just as you do, so tak to him about your feelings it will help. x

Hi,

Bone and CT scan were clear - At last a positive step.

My husband has been brilliant, holding my hand when iI cry and staying awake all night with me as well as dealing with the practical side of things.

As I said your story really did help me to see there is light at the end of the tunnel.

Thank you so much for your support.

Dotty xx

Hi Dotty,thats great news about your scans, now get on with living, keep well x

my wife was diagnosed about 10 wks ago with breast cancer which had spread to her bones and her liver ,drs told her she couldnt be cured ,we have 7 children so when she got that terrible news she was alone as i was looking after kids . when she told me it felt like i had been hit with a freight train , i cant even begin to imagine how it must have felt for her . i feel so guilty for not being there for her and that i let her down cos its my job to look after her . the first 3/4 weeks were an absolute nightmare ,she just looked so scared but now looking at her gives me strength cos shes looking great and not in as much pain as she was . she is getting hormone treatment and bone strengthening medicine and has had a couple of radiotherapy sessions on her spine ,we dont even know if the treatment is working as she hasnt had her second scan yet but she looks and feels loads better ,almost pain free ,a bit stiff in the morning but considering about 4 weeks ago she could barely walk its a big improvement .

Dear Debbie

I am so very sorry I haven`t replied to you sooner. The truth is I have been intending to on numerous occasions and then simply did not know what to say.

I have had my head in the sand for a while and have found it difficult to talk and easier to ignore what is happening and so haven`t been back on the site for some time. I feel dreadful as my original post has had many replies by lovely people including yourself and it`s selfish of me not to keep checking and acknowledging their responses.

How are you feeling? How is your treatment going? I so hope that you have a good response to it and that you aren`t suffering too much with side effects. Are you able to get out and enjoy the good weather?

Do you have a husband or family to help you?

I`m not very good at this, I feel as though typing words is just not enough, I wish there was something I could do. Amongst my family and friends I am the one who everyone turns to when they have a problem, whether its my niece being bullied at school or my mum who can`t retune her TV, Kal always sorts it out, fixes it or solves it. I feel so utterly inept because this is something I can`t fix! All these lovely people with this despicable disease and I don`t know what to say and there`s nothing I can do to make it ok.

I just want to give you a hug and do something to help. I know that I can`t do anything but I`m sending you a hug and I`m thinking of you.

Take care & thank you again for replying to me, I hope you`ll keep in touch.

Much love

Kal x

Hi Kal,

Don't be so hard on yourself...I know exactly what you mean as far as the emotions and to be honest...the head in the sand approach sometimes helps to give your brain time to digest...

cancer (did used to put a capital C but not worthy of one) affects us all in different ways and to be honest if you were all happy clappy about it then that would be a worry too.

Your feelings are natural and you are no different to anyone on here as we all have times when we want to shut the door and be a hermit for a while...

You are good at this as you are typing exactly what comes into your head and how you are feeling and that is exactly what this site is for...for you. If sometimes you feel like chatting to others to advise then do so, if you don't then look after yourself...this is one site that will not judge as you have to do what is best for you.

You say that you wish there was something you can do....one suggestion would be to start your own blog...charting your treatment and how you feel...that will be a starter for your eyes only and when you are ready you can tell others where it is so they can see what is going on. One additional benefit is you don't have to keep repeating what is happening (unless you want to of course). I think that is the worst thing about this despicable and disgusting disease it is something out of our control and is happening too us....there are however ways that you can take back some of the control....eat well and healthily, keep your mind busy and keep logging on here.

Your offer of a hug to Debbie I am sure will help - that is one thing that I don't like about this site as we all make friends on here and have kindred spirits, we need big hugs....

So here is one of Tony's big cyber hugs as it sounds like you need one <<>>

Keep logging and try that blog, have a look at mine...I have only just put the happy background on and can change it with my mood tonysonghurst.blogspot.com/

Stay strong and keep logging on here.

Much Love

Tony x