breast cancer has spread,can anyone help me feel less alone?

Hi, I`m 45 and live with my wonderful partner.

Not sure where to start but I guess right at the beginning is the best place.

About 6 weeks ago I went to the Drs after finding a lump in my left breast, she didn`t think it was anything to worry about even though it seemed quite large but organised a mammogram as a routine anyway. She said that they may do an ultrasound and biopsy too. So, 2 weeks later I went along and wasn`t too worried when I had all three.

I was then taken into a room and told immediately that it wasn`t good news and that I had 2 lumps (one in Lymph) and that they were both cancerous! Also that I would have to have a mastectomy, chemotherapy, radiotherapy & prob hormone therapy. I was in complete shock as the literature I had been given said that any results would be given the following week after tests had come back from the lab.

I then went for a chest x-ray, followed a couple of days later by a CT scan and bone scan. I was told I would be having chemotherapy before surgery to shrink the tumour and zap it as quickly a poss. That started 3 weeks ago and I`m due my second tomorrow but just yesterday I saw my oncologist who gave me the results of my bone scan which I had been dreading as I have a disc problem and so have had back pain for many years. He has told me that the cancer has spread to my bones it`s in my back in three places and in my femur.

I am absolutely devastated. In 6 weeks I have gone from a happy, confident, seemingly fit and healthy, carefree person to a complete wreck who looks and feels terrible.

I coped with the first chemo well ~ I only got a bit of indigestion, so I know I should feel grateful but I`m now starting to feel like what`s the point? I am so low but feel very guilty because I don`t want to upset my partner any more but I can`t stop crying.

It feels as though everything is being taken away from me. I don`t have children but after longing for my own horse for years, I have one, but am now told I may not be able to ride for much longer.

My Mum, who I am very close to, was diagnosed with peritoneal cancer two years ago and may not have long left. I have a very supportive sister but feel that I am just burdening her with more problems.

I am very lucky to have my wonderful partner, he has been amazing. I just don`t know how to carry on right now, I can`t seem to feel positive about anything. I`m not even sure it`s sinking in ~ i`m typing this and it doesn`t feel like it`s me I`m talking about. How can it be me?!

It seems like everyone knows someone who has had breast cancer but never to the degree I have. My friends tell me how people they know have had it and come through ok but that just makes me feel worse.

If there is anyone out there who has been through what I am going through I would soooooo appreciate you getting in touch.

I`m sorry its so long but thank you for reading

  • Hi just read your post, everything you've said so far matches myself, found a lump in my right breast, Ive had lump and lymph nodes removed (so kept the majority of my breast) ive to go back fri to get pathology results back, so fingers crossed Ive caught it early and it hasnt spread, you must be really frightened, I know i am, but its only natural, ive to have chemo and radiotherapy which havent started yet, im sure i'll find all this out friday, I too have a fantastic partner and 2 amazing daughters, keep me posted and keep your chin up, we have to put our lives in the hands of the experts and hope to God they are going to cure us of this horrible disease. Col x

  • Hi Col,

    Thank you for replying to my post. I was beginning to regret putting it on as I watched the `viewing` figures go up and yet no-one had responded.

    It sounds like you`ve caught yours early as you`ve had surgery first ~ I believe that`s a good sign! I know a few people who have had a breast tumour which had spread to their lymph, they`ve all had lump and nodes removed too and although they were both cancerous it hadn`t spread anywhere else.

    I`ll be thinking of you on Friday and will keep everything crossed.

    Chemotherapy isn`t as frightening as you might think. Unfortunately, I was the only one having it when I went for my first session, I had hoped there would be others there, however, the nurses were lovely and I was offered a `cold cap`. If you haven`t heard of it it`s a cap which is fitted tightly to your head and has very cold air circulated into it, this freezes the hair follicles and for some people can reduce hair loss. It didn`t work for me because I had such thick hair I think it insulated my head!! But if you`re offered it, it might be worth a try.

    It must be very difficult when you have children, how are they coping? Children can be so resilient and i`m sure they will be your motivation and strength.

    Thanks again for replying and hope you`ll keep in touch. Kal x

  • Hi Kal

    I'm really sorry to hear about your news, and I can see why you must be feeling so low. I think it's everybody's worst fear/nightmare that the cancer has spread or come back somewhere else. You need to try really hard to hang on in there and get through everything your doctors chuck at you.

    I havent experienced what you've had, but I've just finished 6 FEC chemos for breast cancer, and about to start radiotherapy soon. I'm told I'll be ok after that - but hey, no-one can say that really can they.

    Please don't feel alone - keep posting your progress on here - people may not respond, but as you say, they'll read your story and they'll be with you in spirit.

    A positive attitude really does help you get through things, and my little escape has been through tapping away on this little keyboard - either on here or on my blog. It helps me to clear my mind, and get everything out of my system. Try and find a little escape route yourself - this is a good place to start - so well done you for telling us your tale - we're all with you, so keep us posted.

    Take care

    shents x

  • Hi Shents

    Thanks so much for your reply, it really has helped to hear from others in similar situations. How did you find the Chemo? I`ve just had my 2nd FEC yesterday and seem to be coping well ~ just a little gassy indigestion for 3/4 days which I have some medication for. I have another Fec and then I start 3 sessions of Taxotere along with the Zomeetar for my bones. Did you get very tired towards the end? Am just wondering how much work I will realistically be able to do. I`m self employed which is good as it means I can arrange it around appointments and how I`m feeling day to day. But the draw back is that I`m on my own all day.

    Really pleased to hear you`ve caught yours early and that hopefully ~ as you say, you will be back to normal (albeit a different kind of normal) afterwards. I`m sure in time you`ll be able to resign this part of your life to the dim and distant past and be a stronger person because of it. Hope the radiotherapy goes well I`ve heard you have to go every day for some weeks though I guess this will vary from person to person. But I hear its only for a few minutes each time.

    Take good care, and thanks again

    Kal x x

  • Hi Col

    Just a quickie to say I`ve been thinking of you today and hoping you`ve got the best news poss. on your Path results. I do hope all`s ok and that you`re tucking into some champagne to celebrate as I type!

    Take care

    Kal x

  • Hi Kal

    Hope your feeling ok today, I've been to see my consultant and thank goodness his margins are clear and the cancer hasn't spread so I've to go see oncologist 10th June and my chemo should be starting 17th June, not looking forward to that but trtying to have a positive mental attitude. I'm going to make a couple of appointments and go and see about getting a wig, I'm def not brave enough to go au natural. Have a good weekend xx

  • hi, just read your post and thought i would tell you about my daughter, she was diagnosed with breast cancer last year aged 24 she had the tumour and lymph nodes removed and a month later we had the news that it had spread to her liver, she had chemo which was very succesful and reduced the cancer in her liver to just a trace, she then had another growth in her breast which had to be removed, again succesfully, then a few months ago the cancer spread to her bones, it seems we get over one hurdle then get hit with another, my daughter trys to stay positive and hopeful, we have watchedd her go through some awful times during this last 8 months at one stage she couldnt even walk and had to use wheel chair, but now the treatment for the bones seems to be helping and she is back to walking and leading as nornal lfe as is possible, guess what im trying to say is that your not alone and there is hope albiet you may not think that right now, as we didnt, try to be positive i know thats what everyone says but somehow it does seem help x

  • Thank you so much for taking the time to respond to my post. I feel so much for you and your daughter. I can`t imagine how heartbreaking it must be for you as a mum. I am fortunately feeling fit and well at the moment. Apart from a little back ache occasionally, I have absolutely no pain or symptoms, if I hadn`t found the lump I still wouldn`t know! It really is quite surreal.

    Is your daughter receiving Zomeetar for her bones? My nurse told me that she has a patient who has been on it for 10 years now and is due to go and start a new life in America with a new man! This gave me great hope and hope it will you too.

    Please tell your daughter I am thinking of her and hope she can remain strong and continue to improve.

    Thank you again

    Best wishes

    Kal

  • Hello, i am so sorry to

    hear your news..... i know how you feel as i too have a similar story

    to you but mine is lung cancer spread to bones and elsewhere too.

    Well the way i have come to see it is what will be will be......

    Just make the most of each day, stay positive.

    I was told without treatment i only had 8 to 12 weeks i am on week 7 at

    the moment without treatment, this is starting next week either a trial

    drug or chemo which ever i get chosen for me.

    Or with treatment 1 year maybe 50/50 chance, since knowing this i

    really can say i have enjoyed my time even doing simple everyday things

    so much.

    Can you still walk? if you can i would get out and about, ride your horse do as much as you can every day.

    I am in a wheelchair since the past 4 weeks so up untill then i did just what i have told you to do.

    You have time...... do all of the things you have wanted to do.

    Keep strong

    Thinking of you, Debbie.x

  • hI,

    I know what you're gong though.

    Last week I had a WIE, and22/25 lymph nodes removed which were positive. The BCN said that there is a high possibility that the cells have already spread.

    I have already have problems with my legs aching dut to me having celebral palsy, scared this had added to my cancer. I have to have a bone, lung and liver scan next Thursday, and am so terrified! Can't stop crying, eating and m now on anti-depresents and sleeping pills.

    I'm so scared about the future (if I have one). Sorry to go on, in the last 2 weeks I have gone from being a happy,person to someone who can't even get out of bed! Everythings been taken away from me. Can anyone help?

    I have a wonderful husband, but he's finding it so hard as I am so down

    Love Dotty2xx