Hello, my name is Sally and i have suffered carcinoid syndrom for at least 18 years, not sure how this works or if anyone wants to hear my story?
Hello, my name is Sally and i have suffered carcinoid syndrom for at least 18 years, not sure how this works or if anyone wants to hear my story?
Hello Sally,
I just happened upon this site today, I'm from usa, I noticed that no one has replied to you, well I'm saying yes, I would like to hear your story, 18 yrs is a long time
feel free to write away.....someone somewhere will be pleased to read it..every little helps, and this forum is where people come to find information and others with similar experiences....go you!!
:)
yes would love to hear your story, we all need to share our journeys and how we cope .x
Yes please my wife has 5 carcinoid tumors one on her illum, one on her bowel,one on her appendix and one on each of her aortic nodes she has sandostatin lar once a month lI struggle with her daily with food and liquids your story could help hundreds more in similar situations so like I said PLEASE.....