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Teysuno Drug

SueRey
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Hi, has anyone had any experience with the drug Teysuno? It’s not widely available in the UK but some NHS Trusts will give it in special circumstances. My husbands Consultant has recommended him as a perfect candidate but our Trust won’t agree to it because of the cost. We’re in the process of trying to buy it privately but it would be really helpful to hear from anyone who has taken it, particularly any side effects.

Thank you

  • Hello SueRey

    I'm sorry to hear about your husband's diagnosis and that, despite his consultant recommending him as a good candidate for this drug, you've been unable to secure NHS funding. I can only imagine how disappointing and frustrating this has been for you both. 

    I've looked through the forum and can't see that we have any other members who have reported having this treatment. Hopefully, though, you will be able to connect with someone with personal experience soon. 

    I hope that you're able to find a way forward in securing treatment soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline in reply to Moderator Jenn

    Hi Jenn

    Thanks so much for replying and taking the time to search the Forum, it’s very much appreciated.

    SueRey

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