Hi, now on 4th recurrence, chose surgery this time, would love to know if there is any research projects in the UK covering this cancer. This is so rare, feel very much on my own dealing with it.
You've been through so much and I hope you're getting on as OK as can be at the moment, and that the medical team have given you a good idea of what to expect with the surgery and after.
I can understand you feeling on your own. You may find it helpful to speak to one of our nurses - they could also advise on your question - and if you'd like to do this you can either post in the 'Ask the Nurses' section of this forum, or call freephone 0808 800 4040 - Monday-Friday, 9-5.
Hopefully you have other friends and family around you to speak with - though I know this can be difficult.
We're always here for support whenever you need it, even if it's just to write things down.
Thank you for your words. It’s really difficult to chat about this cancer due to the private area and rarity no one has heard of EMPD of vulva and EMPD is not just a woman’s problem men suffer too in private areas.
