Hi Farmer_Ed thank you for your kind response and so sorry to hear you are experiencing this. I can't get over the fact that we are so lucky to live in a time when ground-breaking treatments like these are possible and yet not have access to them. It's beyond devastating. And aside from the ethics of it, it also doesn't make much financial sense for the NHS to wait for people to get worse in order to treat them. Surely, it's more expensive in the long-term this way.

Has your oncology team told you what the next steps are once you're off cemiplimab? Is long-term remission on the cards?

Hello coolbeans

Yes I agree with you it seems counter intuitive to wait until your husbands cancer is more advanced before precribing immunotherapy. Surly earlier treatment would give a better outcome. I wonder if a different oncologist would determine his cancer at à more advanced stage. For me there is no further treatment available. Ive had radiotherapy and much surgery. The cemiplimab immunotherapy is palliative. Im told there is an enduring effect from it once treatment ends as it trains the immune system to recognise cancer. So Im told by the oncologist that although the cancer is incurable there is a significant chance of long  term remission. And that hope keeps me going. I do hope that your husband is given the chance to have one of these amazing immunotherapy drugs. 

Ed