Anyone from Cornwall ? Would love to connect with others and share support as it can be very isolated out here

Hello

I'm Tanya, based near Newquay in Cornwall. I was diagnosed in 2021...screen-detected DCIS, which turned out to also be a 35mm grade 3 invasive ductal carcinoma. By the time we had the full picture, 20 out of 31 lymph nodes were positive. There was also a worrying adrenal mass diagnosed as a secondary, which thankfully turned out to be a false positive (the relief of that moment is hard to describe).

I had a wide local excision, axillary clearance, weekly paclitaxel, a cycle of epirubicin and cyclophosphamide (stopped due to severe toxicity), and radiotherapy. I was on anastrozole for a year and a half, switched to exemestane, and completed a two-year course of abemaciclib. I'm now on the Elegant drug trial with elacestrant.

I'm not sharing all of that to overwhelm anyone, I doubt anyone here would be. You've been through your own version of this. The physical side is one thing. But navigating life during and after cancer, in a county where there is so little community support? That's its own very particular kind of hard.

Cornwall is beautiful, and I wouldn't be anywhere else. But it's also vast, rural, and genuinely isolated when it comes to the kind of connection and support that people going through cancer need and deserve.

I'd love for us to start something here, a little Cornwall corner of this community. Somewhere to check in with each other, share what local support does exist, and simply know there's someone not too far away who truly understands.

If you're in Cornwall, I'd love to connect. 

Tanya 

  • Hi Tanya, welcome to Cancer Chat.

    I'm sorry to hear about everything you've been through since you were first diagnosed with invasive ductal carcinoma back in 2021 but I'm glad your treatment has gone well and I hope the trial you're currently on will be a success as well.

    As you say, coping with and life beyond cancer can be very tough but I hope by joining our community you will feel a little less isolated and alone.

    I hope some of our members who have had the same diagnosis and/or are based in Cornwall will stop by soon to say hello and tell you a bit more about themselves, but in the meantime if you have any other questions or concerns you can give our cancer nurses a call. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

    If you haven't done so already, you could try asking your GP or medical team about what support services may be available in your local area but you may want to look into the Someone Like Me service that Breast Cancer Now offers as well.

    We're thinking of you Tanya and sending all our support your way.

    Kind regards,

    Steph, Cancer Chat Moderator