Hello Wilma2013

I can see that Bunty1952 posted a message about being diagnosed with myelofibrosis a couple of months back, and that you were able to chat with other members who have experience on that thread. I can't see that we've had any other recent members post to share their stories of living with this rare diagnosis. 

If you've not already done so, then I'd also suggest having a look at the Blood Cancer UK website. As a blood cancer specific charity, you might find you're able to connect with others living with myelofibrosis through their support services as well. 

If you ever want to talk things through with one of our team of nurses you're most welcome to call them. I know they will be happy to listen and offer any advice and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

I do hope you're able to connect with others. 

Best wishes, 
Jenn
Cancer Chat moderator