Hello Irene70

I'm sorry to hear that you've recently been diagnosed with polycythemia vera. I hope that you've been feeling well supported by the health professionals involved in your care and that they have been able to answer any questions you might have. 

There are a few members who have recently mentioned being on Ruxolitinib. A post was shared by Wilma2013, who shared some of the side effects she was dealing with. And member fredo03 mentions in their post that they are taking ruxolitinib as part of their PV treatment. Hopefully you'll be able to connect with some members who have experience with this type of treatment and can share their stories with you. 

In the meantime, if you'd like to talk things through with one of our team of nurses, you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information, and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

I hope this helps and that any side effects you've been experiencing settle soon. 

Best wishes, 
Jenn
Cancer Chat moderator