Hair loss due to salivary gland radiotherapy

Hi all,

I am currently undergoing radiotherapy following a salivary gland cancer diagnosis in a parotid gland. Some side effects are kicking in, but on the whole my energy levels remain good and I am managing to eat and drink fairly well. 

However, over the last couple of days I have noticed some hair loss when washing and brushing my hair. Some is the hair close to the parotid gland, which I was expecting, but also some on the other side of my head. I assume that is where the RT beam is leaving my body. That wasn’t really explained very well to me before RT started and I am not sure how much hair loss to expect. I feel it is one of the side effects which isn’t really spoken about and it isn’t anything the nurses or radiographers have asked me about when I have had my appointments. I am concerned I am going to have massive visible bald patches which I can’t hide. I am not vain, but it is just such a visible sign of what is happening on top of everything else. I know everyone is different, but I was just wondering what other people’s experiences were of hair loss in head and neck RT. 

Many thanks 

  • Hello Loz

    I had parotid gland and neck lymph nodes removed 11 years ago the radiotherapy caused hair to fall out at back of head near neck and side of head above parotid area this grew back after around a year. However I cannot grow a beard on one side of my face. It took around 2 years for saliva to return to normal I still carry  bottle of water around with me. The last week of treatment and the week after that are the worst. Then you will start to recover. Keep up with the mouth washes and dental hygeine. Ask for creams if you get skin burns. Drink plenty and try to eat little and often use supplement drinks if you cannot eat. If you lose your sense of taste eating becomes a double chore but it will come back over several months. The radiotherapy team are there to help you get through your treatment so ask them any questions or concerns you have. Wishing you lots of strength to get you through the treatment. 

    Ed