Coping…I've been diagnosed with glioblastoma. I'm 27 years old and I've been given 10 years. I have no support

Hello, I’m 27 and have glioblastoma. I’ve been given approximately 10 years. I’ve had to freeze my eggs and can no longer have children. My family say I shouldn’t have any because of leaving them behind at a young age. This kills me, it’s also like the purpose in my life as a women. I worked in mental health as a nurse and can no longer do that because of it being a brain condition. I’ve got a scar across my hair line and have lost most of my front hair and sides. Can manage a pony and a hat but it’s so irritant. I’ve gained so much weight. I’ve lost my identity, we thought it was going to be a life span of 5 years. 

im struggling most with the hair loss if there is anything anyone could recommend anything I would really appreciate and I wanted my own family. I have no support and 10 years feels like a long yet short time

  • Hello Brainstink

    I'm sorry to hear about your diagnosis and that you're struggling with all that has happened. It sounds like treatment has really impacted you, and it's understandable that you're experiencing a rollercoaster of emotions as you move forward through an uncertain future. 

    We do have some information about cancer and hair loss on our website that you might find helpful. I'm not sure how long ago your surgery and radio/chemotherapy were completed, but hopefully you'll continue to see some slow regrowth over the coming months. 

    It sounds from your post as if you're feeling quite alone on this journey. It's not uncommon for people to feel this way when they have been through treatment for cancer, and I think perhaps more so when you know that your future will be greatly impacted by it as well. I don't know if there are any organisations such as Maggie's in your local area where you could call in for a cuppa and chat with others who will understand some of what you've shared with us here at Cancer Chat. As a young woman who has been through this, you might also want to reach out to an organisation called Shine Cancer Support. They specifically support people in their 20s, 30s, and 40s who have been diagnosed with cancer, and of course, The Brain Tumour Charity is another way to connect with people who will have shared experiences. 

    If it would help to chat with one of our nurses, Brainstink, you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Hopefully over the coming months, you'll find the support you need. Keep posting here in the Cancer Chat community if it helps to have a safe space to put down in writing how you're feeling. We're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator