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Filgrastim pain and EC chemo. Has anyone else experienced this?

Redhotchilli
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Hi

My first time on here. Im on EC chemo and having 5 days of Filgrastim injections. The first time round I had horrendous pain in my lower back, hips and legs on days 4 and 5. This time round again I had the pain on days 4 and 5 then I was ok for 5 days then the pain has returned. Ive had it fir 5 days now. Has anyone else experienced the pain returning like this? Thank you for any help 

  • Hello Redhotchilli and welcome to the forum.

    I'm sorry to hear about the really bad pain you've been experiencing in the lower parts of your body on days 4 and 5 of your treatment. This must be incredibly difficult, and frustrating.

    If you haven't done so already, make sure you speak to your medical team about this as they will be best placed to advise and may be able to provide you with something to help with the pain.

    Hopefully some of our members who have had a similar experience will share their tips and advice with you soon but we also have a team of cancer nurses you can talk to on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all that they can to help.

    In the meantime, we're sending you all our support Redhotchilli and hope the pain starts to become more manageable soon.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    Thank you. I have spoken to my oncologist and he has prescribed co codamol. Im hoping it helps this time round

  • in reply to Redhotchilli

    That's great. Fingers crossed it works and you experience less pain this time round Redhotchilli.

    All the best,

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    Hi sorry to hear you are going through this pain.

    i had the same meds as that one only thing is it works pretty well.

    and will be worth it.

    I had lung cancer in both lungs almost five years ago .

    and still chugging along.

    positive thinking helps..

  • Offline in reply to maggie_1234

    Thank you! Yes it works well but the pain is agony! Im a very positive thinker and am coping with the side effects of chemo it's just these injections that floor me. Starting them again tonight and hoping my stronger pain killers will  help this time.

    Well done to you going through that must have been really tough!!! 

  • Offline

    Hi it’s also my first time on the cancer chat Im 69 lady with cll cancer in my bone marrow cells and had lots of issues with treatment I’ve a very weakened immune system and also have GCSF injections I’ve had horrendous pain in my back and leg it was so painful I was particularly paralysed I was admitted to hospital last year and had to have a morphine driver in my back   The doctors never said it was Filgrastim but it can cause pain  Im now trying it again and again had really bad back pain Im taking a 5mil gem tablet twice a day for bone pain and parisetermol every night before bed to help with the pain  Im try other things like drinks to boost my immune system and plenty of fruits Hope this helps you as Im in the same situation kind regards 

  • Offline in reply to RIC31

    Hi, sorry to hear that youre going through such a terrible time. I appreciate your reply. I started on my injections again last night but am now on codeine and paracetamol which im hoping will help this time.

    Sending good wishes to you x

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