Hi Fairman and welcome to the forum.

Hopefully some of our members who have had this type of immunotherapy will share their experiences with you soon, but in the meantime I hope this information we have about pembrolizumab, including a list of side effects you may experience, will be useful.

If you have any other questions or concerns about starting your immunotherapy that you'd like to discuss with someone, you can give our cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

We're sending you all our support Fairman and wishing you all the best with your treatment.

Kind regards,

Steph, Cancer Chat Moderator

Thanks Steph, I know side effects can differ from person to person but I thought maybe somebody who’s been through it could throw up a little insight as to what they personally experienced.

Hi Fairman

This link to an old thread has many first hand experiences of Pembro

https://cancerchat.cancerresearchuk.org/f/living-with-cancer/122103/immunotherapy-treatment?pifragment-396=5#pifragment-396=1

If you search the forum you will find many more

Ed

I have my last treatment on 28th 2 yrs on ,side effects vary from person to person and from cycle to cycle. 

My side effects have been mainly  skin irrations and tiredness. 

Odd cycle some stomach cramps and nausea  

But  nothing to stop treatment. 

I have lung cancer has decreased and not spread. 

They can help you with side effects so go of it and best of luck 

Hi Sukien, 

Thanks for the reply, glad to hear your side effects have been light, I'll certainly be giving it a go.

Fairman

Hi Farmer Ed, 

Thanks for the link, I read through them all and now feel a bit more informed and relaxed about starting the Pembro journey next week .

Fairman

Hi Farmer Ed, many thanks for the link, I've went through all the pages , it's really helped to calm the reservations I had about starting the Pembro, I start on it next week so hopefully not have too many adverse reactions as it was just the information I was looking for to give me the insight into  other people's experiences.

Thanks again.  Fairman

Hi I am now on my 4th treatment of this and the only think that I get is a bit of itchy skin and not all the time ...you get given a bottle of lotion to keep the itch at bay....so all in all I have been very lucky. Goid luck with your treatment.x

Hello ElaineJane

Im glad that you are tolerating your treatment well.

I suffer itchy skin too and was interested what is the lotion you use to control it.

Ed