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It's back again

friendlyface
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Tumor in my bowel in Jan 2025. Panproctocolectomy surgery performed and recovered well. Had 4 cycles of chemotherapy - CAPOX.

Back with consultant in Nov and ended up with biospy on a dodgy looking bellybutton. Tested positive for cancer. Following CT, PET scan and MRi showed cancer spread to outer lining of the liver, womb, Ovary & I'm sure there were other places but can't remember. 

Surgery not possible. 

12 cycles of Fluorouracil (5FU) is being given. I start the 1st week of January. 

Is the 5FU really strong? When did the hair loss begin or does it happen for everyone? 

I got through CAPOX with a strong faith and praying family and friends, I know God will carry me through this time too. 

Thanks 

  • Hi friendlyface,

    This sounds like a lot to process and I hope you're getting on as OK as can be.

    It is good to hear that you have your faith and family and friends to support you too.

    For any medical questions specific to you, do discuss these with your doctor or medical team as they will be best placed to advise.

    You are of course always welcome to give our nurses a call if you'd like to talk anything through with them. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    We're always here for support whenever you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Offline in reply to Moderator Ben

    Hi, friendlyface - I had fluorouracil as part of my FOLFIRINOX regimen - which included oxaliplatin, which I see you're familiar with - and I don't think it caused my hair to fall out. It's very thin and I wear it short anyway, but all I could notice was slightly slower growth. I hope that's helpful. You've already been through a lot and you sound very strong. Wishing you all the best with it. 

  • Offline in reply to Luke1971

    Thanks for the "hair" insight.

    How'd you find the oxyplatin? It was part of the CAPOX for me. I just couldn't tolerate the cold.

    So thankful this chemo allows me drink cold water again - simple pleasures of life.

    So far cycle 1 wasn't too bad. Bit of nausea and shoulder pain. Cycle 2 starts in 4 days... Back to carrying the bottle around for 48hrs.

    Praying you are on the road to recovery. 

  • Offline in reply to friendlyface

    Bless ya: I'm fine, thank you. Final dose was a couple of years ago. I think that oxaliplatin is vile but, from what I can gather, hugely effective. I couldn't believe - when I was on it - that its weird side effects would ever go, but they did. Glad your first cycle wasn't too bad. You can definitely do this!

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