Follicular Thyroid Cancer, spread to both lungs and now thyroid bed....

Hi There,

I am just feeling lost.  For the past 15 months, since being told after having a 3rd of my lung removed to remove the metastasised cancer, that it had come back but in both lungs and then last month was told its also started to grow in my thyroid bed (had total thyroidectomy in 2020), just feelig overewhelmed all the time.

I have been trying to remain positive and live life as well as I can, howoever i was retired from work in Feb 2025, due to vocal chord damage, anxiety attacks, stress on my body, sever fatigue, and now i just think im feeling lost and left to let the cancer grow.  having looked at stats i feel i possibly only have a few years left, havent been given Lenvatinib just yet, but the constant anxiety, its no longer the what if it returns, but how long do i have left?

I do go to MAggies centre in Manchester but not yet met anyone that is living with it growing an metastising. my friends and family forget about it, as i try to be upbeat, then they dont want to talk about it as a reality, im kind of panicking and just dont knowo where to turn to.

  • Hi Shellbell68, 

    It's normal to feel lost after everything you've been through and finding out last year that the cancer had started to grow in your thyroid bed. It must have been so hard to have had to retire from work in February due to vocal cord damage and to have suffered anxiety attacks and severe fatigue. Try if you can not to look at any stats as these are just averages and are definitely not indicative of what will happen in your particular case so it's best not to pay attention to these too much. The anxiety can get overwhelming though and it's important not to suffer alone with these dark thoughts and perhaps you could talk to your GP about how you have been feeling and see if they have any suggestions to help you during this very stressful time. 

    It's great that you are going to a Maggie's in Manchester and I hope that you have found it a supportive and welcoming environment. I hope that you will get to talk to others on here who have been diagnosed with metastatic follicular thyroid cancer. Sometimes it is hard to talk to friends and family about all this and this is why the forum is a safe space to meet others who find themselves in the same boat and you may live miles away and never have seen each other but you do share something important that you can't talk to many other people about: a similar diagnosis and crucially a mutual understanding of how this diagnosis affects you physically and emotionally. 

    I hope that you will hear from others on here who have had this diagnosis and for whom it also spread and that you can support one another during these difficult times. 

    Best wishes, 

    Lucie, Cancer Chat Moderator