Don’t know what to do with myself! Since starting chemo and immunotherapy I don't really get any joy out of anything. Has anyone else felt like this?

Diagnosed with S4 Cholangiocarcinoma in Feb (bile duct cancer) they went in/surgery in May, closed me back up and been whacking it with chemo and immunotherapy. Mildly working! All in all, I feel fairly ok, but the boredom, lack of stimulation, with this sense of restrictive ‘semi-retirement guilt’ is a strange mental situation I just don’t know what to do with. I keep doing activities to “pass the time” or sit in gratitude with, along with friends and family, but it’s like I get very little joy out of much. I can look around, count my blessings, be in nature but feel the drugs are not just making me “blazé” to everything. 

Has/ is anyone else experiencing this? Are the chemo drugs just sucking away any “happy hormones”? 

  • Hi NezzaM,

    Welcome to Cancer Chat. It's good to hear you are feeling OK in general, although I can understand that it must be difficult with what you are describing here.

    I wanted to send a reply to your post to give it a little boost, so a few more people should see it and hopefully you'll get more replies - particularly if others with similar experience see it.

    It sounds like you are doing well in terms of focusing on certain activities and gratitude. Keep taking things a day at a time and perhaps soon you may start to experience a little more joy with certain things.

    You can keep in touch with your doctor about this to get their thoughts, and to see if there's anything they could suggest to help too.

    We're always here for support whenever you need it and I hope the forum is helpful for you.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator