Not coping with rare cancer diagnosis and treatment

I was diagnosed with Stage 3 Adrenal Cortical Carcinoma in January 2025 following major surgery in December to remove a 16cm tumour which was found incidentally after a scan for suspected gallstones. I also had my kidney, half of my liver and part of my diaphragm removed and had a large bleed (lost 3 litres of blood) when my IVC was repaired as the tumour had grown into it. I'm on daily chemo in tablet form and hydrocortisone tablets. I'm finding the medication hard going with brutal side effects. I'm struggling with not being the same person that I was and not being able to do the same things, even things as simple as going for walks which I love tire me out. The fatigue is awful and the mental impact is often overwhelming. I try to do different things, for example I've started practicing yoga which has been adapted for cancer patients and I go to social groups for cancer patients from time time although as my cancer is rare there's never anyone else with the same as me. I am back at work as I can't afford financially to not be. How does everyone cope with the emotional impact of cancer and the profound change it has on you as a person? I'm not a wallower and not after sympathy, just practical advice.

Thanks in advance

  • Hello Shazzy_G

    I'm sorry to hear about all that you've been through since your cancer diagnosis. It's understandable that you're feeling overwhelmed by everything. It sounds like it's been a really difficult time. 

    From what you've shared about your support group and the physical activities you're undertaking, it sounds as if you're making positive steps to help improve your mental health, which is great. It can take time to adapt to the new normal after a cancer diagnosis and treatment. Whilst you may not meet anyone else with the same diagnosis, there are often many shared experiences and side effects that cancer patients have, and hopefully, you will find support and connection with the other people you meet through your group. 

    We have some information about cancer and mental health on our website, which may be helpful, but you might also like to explore the possibility of some counselling support. Organisations such as Maggie's offer individual support, but you can also talk with your specialist cancer nurse to see what other services may be available in your local area. 

    If it would help to talk things through with one of our nurses, you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I do hope that things improve for you Shazzy_G. Know that the Cancer Chat community is always here for you if it helps to have a safe space to put down in writing how you're feeling. 

    Best wishes, 
    Jenn
    Cancer Chat moderator