I really don't know what to say. I know i have the disease. Can't accept its happening to me. It's a very rare cancer. I am scared to write stuff on my book. I think once I have written ir. It will hit me like a ton of bricks
I'm sorry to hear that you've recently been diagnosed with a rare cancer. It's understandable that you're feeling overwhelmed by this news.
We have some information on our website about rare cancers that you might find helpful. If you feel able to share more with us about your diagnosis we can try to share more information with you and perhaps help you get in touch with others who understand what you're going through. If you would prefer to talk with one of our nurses you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040.
Hi, I was diagnosed with Meduallry thyroid cancer just before my 27th Birthday. At first they confirmed it was Papillary and I had a total thyroid removal along with neck dissection for lymph nodes. I am 10 weeks post op. It still doesn’t seem real but I stay positive. I talk about it openly to my family/friends I feel it gets rid of that taboo with the word cancer. There are many forums such as this one on Facebook and other social media that I find very useful in understanding all of this as I can relate and know where I can go for support with people who are going through it to.
its okay not to be okay and you will find strength that you may have not known you ever had. I keep a healthy mind it makes me stronger,
