I was diagnosed with Follicular NHL 2 years ago(enlarged retroperitoneal lymph nodes Grade 2) and am on active surveillance.,which involves 4 monthly bloods and a telephone consultation with the haematologist.My MRI scan at diagnosis also indicated a sciatic schwannoma measuring 3.3 cm and further issues which have led to a diagnosis of Secondary Progressive Multiple Sclerosis for which I am under the care of a neurologist.I have had no further follow up on the schwannoma,and was told to' not worry about it.'
I have increasing tingling and stabbing in my groin where it is situated.I haven't had a scan for 2 years and am worried it is getting bigger.Of course I realise the symptoms could be MS related, or my NHL, although my bloods have been normal so far. I'd love to hear from anyone with a similar diagnosis of schwannoma and if they are being monitored?
- Many thanks
