I am so so sorry for you and cannot begin to imagine how you are feeling.  I am currently waiting to see a specialist at the sarcoma clinic - I have a mass on my upper arm - thought nothing of it tbh and when I saw my respiratory consultant (asthma) as I had a cough that will just not shift I told her and she sent me for an ultrasound.  I had the ultrasound on 5 March and it was a consultant radiologist who said it was definitely not a cyst and not lipoma (fatty tissue) and I needed an urgent referral to the sarcoma clinic.  I have had my appt through for 7 April (Liverpool) but I thankfully have Bupa with work.  Because its so rare there is nobody on Bupa I can see in Liverpool so I have an appointment on Monday with a specialist at a private hospital in Manchester.  I am hoping an praying for some good news on Monday and that I have now been worrying about nothing but time will tell.  I have been researching on the Sarcoma UK website and on a positive for me it says 8 out of 10 referrals are not malignant, however it also says that's because they are a cyst or fatty lump - which I know from my ultrasound this isn't the case - the waiting is driving me nuts! For you I would say try to stay calm and remain as positive as possible.  Take all the advice you can get and if you feel like you need or want a second opinion ask for it - you have to advocate for yourself especially with the NHS the way it is.  I truly hope you get on a positive treatment plan.  Sending positive thoughts your way x Keep us updated on how you get on x

Hi, just saw your post and I'm awaiting a CT scan.. saw the G.P 3rd March re lump at top of my arm...bloods were taken and referral for CT and Orthopaedic Consultant... I have badly controlled asthma [ don't tolerate steroids]  very breathless and continuous cough.. I have also been under investigation for bowel issues.. my GP told me 'I think your breathlessness is related to bowel/lung cancer'...and not your asthma.. call from colorectal consultant who said further investigation needed,  appt for Ultrasound.. then I  noticed the lump..it is the referral to Orthopaedic consultant that concerned me.. brain querying possible link and referral to bone Doctor...

I noticed your post was a couple of weeks ago.. hope your appointment went well..

Hi, just saw your post and I'm awaiting a CT scan.. saw the G.P 3rd March re lump at top of my arm...bloods were taken and referral for CT and Orthopaedic Consultant... I have badly controlled asthma [ don't tolerate steroids]  very breathless and continuous cough.. I have also been under investigation for bowel issues.. my GP told me 'I think your breathlessness is related to bowel/lung cancer'...and not your asthma.. call from colorectal consultant who said further investigation needed,  appt for Ultrasound.. then I  noticed the lump..it is the referral to Orthopaedic consultant that concerned me.. brain querying possible link and referral to bone Doctor...

I noticed your post was a couple of weeks ago.. hope your appointment went well..

So sorry for the delay in reply!  re you any further in your journey?  Sending positive vibes your way!  I had a wide excision biopsy on 4 April were they removed all the tumor - results were due in 2-3 weeks and I had an appt to get them on 22 April but after initially telling me my results were back they then said they wanted to do more tests so was booked in today (30 April) to get them... low and behold a call yesterday they are still not back.  No date or timescale so no further appt booked just waiting... the waiting is excruciating.  Sending positive vibes your way!