I've had a look through the forum and can't see any mentions from other members who have been told they have Li-Fraumeni syndrome. There are however a number of posts where a TP53 mutation has been mentioned. You can read through some of those using the forum search function at the top of the page.
You might find it interesting to read through this article on our website from September 2023 about Li-Fraumeni syndrome. You might also want to have a look at this article from the Manchester Cancer Research Centre.
Hopefully, someone who is living with this diagnosis will post to share their experiences with you but if you'd like to chat things through with one of our nurses you can call them on 0808 800 4040, Monday to Friday 9am to 5pm.
Thank you so much for this information Jenn It is very informative. I am at the very early stage of being tested for genetic answers to my multiple cancers over 40 years and these articles are great resources. Thank you
