cabozantinib doses

currently on 40mg and tolerating it quite well except mouth soreness difficult to eat. does anyone take 20mg dose and does it help this and does it work at same time. scared to lower dose in case it doesnt work. be good to hear if anyone has any experience

  • Hello Chris9

    I'm sorry to hear that you're struggling with mouth soreness from the medication that you're currently taking. It's a common side effect of this treatment. We do have some information on our website about your mouth and cancer drugs

    I presume you've spoken with your care team about these symptoms and that they've recommended a reduced dose to try and improve the side effects? It's understandable that you're feeling concerned about the potential impact that lowering the dose may have. Weighing up the risks and benefits of any treatment changes can be difficult. 

    If it would help to talk things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    Whatever decision you make Chris9, I do hope that things settle and improve for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator