Cancer Research UK main site

At a crossroads - diagnosed with NH Lymphoma two years ago and I have decided to stop my Rituximab maintenance. What happens now?

Murfmeister
Offline

Hi, i hope some people are out there.

I was diagnosed with NH lymphoma about 2 years ago, i have family connections but have received fabulous NHS treatment of the Mustard Gas Chemo and now the Rituximab maintenance, i don't know what grade of cancer i had, i know it was slow growing but i did have a chunky 110mm tumour when i started chemo.

I have decided to stop the Rituximab after 5 cycles, I feel i need to reclaim my old life back without the anxiety and diarrhea of life on Rituximab.

My question is this, what now for me, what do i watch for to check if my cancer has reared its ugly head again ?

  • Hello Murfmeister

    I'm sorry to hear about all that you've been through and in particular that you've been struggling with the side effects of treatment recently. I know many of our members here will understand the desire to reclaim some quality of life. 

    What have the hospital team said about plans to monitor your health moving forward? Do talk with them or contact your specialist cancer nurse if you have one to talk about any questions and concerns that you might have. If it would help to chat things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I do hope that things settle for you and that your daily quality of life improves. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.