Hi all,
I was wondering if anyone was aware of any other treatments that are available for inflammatory breast cancer, it appears that the only options are chemo, radiotherapy, targeted treatment and surgery. I would like to know what else is out there and where I can access it and how? I get it that this type of cancer is rare and non invasive treatments do not appear to have been developed but surely there must be something else out there? Additionally, is there anyone that is finding any alternative or complementary treatments useful?
I want to avoid surgery if I can at all costs or if I must have it prepare myself for it. I would like to know if there is anyone out there that has inflammatory breast cancer stage 3 and opted not to have a masectomy, what did you have instead, what was the impact of the decision/prognosis? Or if anyone knows if someone didn't and how long they lived for after,
I would also like to hear experiences from people that had a masectomy for IBC, how did they cope, what does it look like, what reconstruction did they opt for, what were the reconstruction results, complications.issues etc.
Any info would be really useful.
Thanks,
Rose