Loosing my identity

I was diagnosed with blood cancer 3 years ago and I have coped pretty well so far. I am not eligible for treatment and just have regular check ups. For the past 6ish months I have struggled daily with pain, fatigue and itchiness. I went to the GP who gave me a it depressants. I then went to see my consultant who was concerned about my symptoms and I have had a bone marrow biopsy to see if my cancer has progressed. I feel poorly every day and feel like I spend my days sleeping. I’m missing out on so many opportunities because I’m just not able to do them because the pain and fatigue is so bad. I know this is nothing in comparison to what some people go through but I’m just fed up. I feel like I’m not the person I used to be and I’m slowly loosing my identity!! 

  • Hi Aimee!

    I'm afraid I don't have any advice, just solidarity. May I ask if you have an MPN? As what you've experienced sounds very familiar to me. I have alerted them to several issues, inclusive of pain and fatigue and been told that I shouldn't be having symptoms so it must be unrelated. I'm sorry that you're going through this and hope that you get some form of answers / treatment that helps make you comfortable. Equally, I also understand the feeling of losing yourself and the sense of guilt from sleeping so much. It would be really nice to chat to someone who understands, so please feel free to reach out if ever you'd like to talk.

    Laura

  • Hi Laura 

    yes I do have an MPN. That would be great to speak to someone who is going through similar

    Aimee