Stage 4 Glioblastoma - my 2 eldest children are struggling. How can I help them?

I’ve a glioblastoma (stage4) which is very aggressive and also incurable. 

I get extremely tired very easily and struggle to eat due to having no appetite.

I also have 4 children aged 16,8,and my twins which are 2.

my eldest 2 children are struggling and I have tried everything I’ve been open and honest about the situation and I’ve told them that they can ask me anything but they both don’t want to upset me… 

but when there not with me I’m upset that they feel that way so any advice would be amazing.  Xxxxx

  • Hello Gliobex

    I'm sorry to hear about your diagnosis and that in particular, you're feeling concerned about how you're two eldest children are coping with things. It's natural as a parent to want to protect and support them as much as possible. It's understandable that they in turn don't want to upset you. 

    I don't know what other support there is around both the children and you as a family. Is there another trusted adult within your friends and family circle that the children know they can talk with if they have questions or concerns? I don't know if you've spoken with your children's schools about your diagnosis but it's certainly worth bringing them up to date with news as there will be pastoral support available for both the children where they can potentially access counselling support. 

    We have some tips about talking to children on our website but you might also want to have a look at the website for The Brain Tumour Charity in particular the information they have about available support options. 

    Talk with your specialist cancer nurse about your concerns for the children as well. They will have supported many parents in similar positions previously and will be able to tell you what services might be available locally to help support your family. 

    If you'd like to chat things through with one of our nurses you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I hope that as a family you can access the support you all need as you navigate your way through this difficult time. 

    Best wishes, 
    Jenn
    Cancer Chat moderator