I'm sorry to hear you're on your third recurrence of extra mammary paget’s disease of the vulva Mariaz. This must be very frustrating.
I'm not sure if our members are in a position to provide you with research into this area, but we do have a team of cancer nurses that may be able to help so if you'd like to speak with them about this, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m or you could make a new post about this in their topic area called ask the nurses. They're very well informed and will do all they can to provide you with the information you're seeking.
Thank you for your reply I will indeed request a chat with the nurses as any ideas towards coping with the side effects of using Imiquimod would be very helpful. I am an NHS patient do not have funds for private healthcare. The Consultant I’m under now is very helpful have no issues at all with her or her Departments support. Just thinking rare Gynae diseases are not researched.
