Hi, my husband is 30 and was diagnosed with stage 4 bile duct cancer 2.5 years ago. He was on a clinical trial for a while which worked well but stopped working in April this year, since then he’s had abit of chemo but now nothing for the past two months. He’s waiting for Futibatinib which was approved 11/09/24 but still no sign of starting. I wondered if anyone else had begun taking it? It’s so frustrating to know it’s been approved but no idea when he can start it, in the mean time he is in agony and becoming more unwell with jaundice that he has begun experiencing for the first time since he was diagnosed.
