I'm sorry to hear that you're living with acute MDS and presumably now facing the prospect of stem cell treatment. It's understandable that you may be experiencing a wide range of thoughts and emotions at the moment.
I've had a look through the forum and can't see that we have any members who have recently been active and have the same diagnosis. We do have some information on our website about coping with MDS which also includes links to specialist MDS support charities such as The MDS Patient Support Group and Blood Cancer UK.
If you think it would be helpful to talk with one of our nurses about any questions and concerns you have you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can.
I hope that you can connect with others who have experience of living with this diagnosis.
