Ovarian cancer recurrence tests

Hi, I've not posted in a while but find myself in a deza'ous situation.  Don't know if anyone else has experienced the same, I'm lost, feel alone in my head trying to get to grips with things so that I don't stress family and friends further. 

I have fallopian tube cancer, high grade serous carcinoma, stage 3B.  Full hysterectomy December and it recurred on the left and right flanks of the peritoneum before chemo started.  Had a baseline scan after 6 rounds of carboplatin and paclitaxel which seemed to have cleared it. My Cea was 3.1 then.  I have been having issues and a scan shows that I have a calcified bowel.  I have a more detailed scan tomorrow.  My Cea has risen to 3.5. 

Just wondering if anyone else has experienced this.  Feel like I'm back to waiting for that daunting meeting with the oncologist and can't rest.  Really want a Christmas this year, last year only came home late Christmas eve after surgery so my head is a bit at sorts but I feel I can work through it. 

Any help on this would be greatly appreciated. 

  • Hello Ruzz

    I'm sorry to hear about all that you've been through over the last year and that you're now waiting on the results of some further investigations after recent problems. It's understandable that you're experiencing a rollercoaster of emotions at the moment. 

    It's natural that you don't want to worry your family and friends. It does sound like you could do with some support though whilst you're in this period of uncertainty. I don't know if you have a specialist cancer nurse that you could reach out too. Or it may be that there is an organisation such as Maggie's in your local area that you can visit for some support. 

    Here at Cancer Research UK, we have a team of nurses that you're welcome to call. I know they will be happy to listen and offer any advice and support they can. if you think it would help to talk things through with them they're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Do let us know how you get on Ruzz. Hopefully you will have some news from the specialists soon and they will be able to give you some reassurance. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you Jen for your advice, I will look into it.