Living in uncertainty with ESS

Hi,

I’m Sarah, I’m 25 and I was diagnosed with stage 3 uterine cancer this year. To be specific, I have low grade endometrial stromal sarcoma but it behaves similarly to high grade.

this year I have undergone three major surgeries to remove my uterus, cervix, fallopian tubes and ovaries as well as some cancerous deposits on my bowel serosa and peritoneum.

i have been consistently let down by the NHS in my journey over the past year and even still, despite giving me NED status 2 months ago, three weeks ago they called and told me that they’d misread the radiology report. I’ve had further scans now and the radiologists be.ieve the tissue to look benign but my surgeons are unsure.

i am working so hard on being positive, living my life and just carrying on until the next bout of scanxiety hits in January but it’s bloody hard. How do you cope? How do you remain positive and stop feeling woe is me? 

thank you for reading xx

  • Hi Sarah and welcome to Cancer Chat.

    I'm so sorry to read all that you have been through since being diagnosed with ESS.

    It sounds like you've been on quite a journey and I can't even begin to imagine the physical and emotional impact these operations have had on you, but you are strong and you will get through this.

    Staying positive and trying to carry on as normal when anxiously awaiting more tests and results can be very tough so be kind to yourself Sarah and allow yourself to feel all the emotions you need to, both good and bad, as it will help you cope with the uncertainty your situation brings. Talking to friends and family, if you feel comfortable doing so, will really help as well so do reach out to them when you find yourself struggling.

    So many of our members here will completely understand what you're going through as well, so you are not alone Sarah, and I'm sure you will receive some support and advice from them soon.

    If you ever want to talk things through with one of our cancer nurses, you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk and they will do all they can to support you.

    Do keep posting if you find it helps and remember that we'll always be here for you. 

    Kind regards,

    Steph, Cancer Chat Moderator