Hello iwas diagnosed with myeloma in 2014 went straight onto chemo then had stem cell transplant hoping it would put me in remission  for 5 years I was in remission  for 15 months. I have been on chemo ever since? Mostly treated at hospital but now I self medicate at home inject and tablets weekly.I have had various  different  chemotherapy due to my condition  changing..it's been a bit of a hard slog but it's keeping me alive and on the whole I have been quite well and able to do anything  and everything  ie holidays , keeping active and enjoying  everyday  as it comes.i have difficulty sleeping on chemo days due to high dose of steriods.it is a daunting  prospect and scary but you learn to live with it I'm so lucky to have had 11 years this Christmas . I tend to put it out of my mind as much as possible and not dwell on it there is very little you can do to help the condition as its blood related and dependant on your blood results mine are done monthly. The stem cell transplant isn't very pleasant, I was in isolation for 8 weeks , couldn't eat, had blisters in mouth , diahorrah, sickness, and many other side affects but you do anything to try to help with the condition and soon forget the suffering, it may well work well  for your mum anything is worth trying. I was petrified and cried a lot as no one in our family  has ever had cancer , I felt alone and lonely and of course  why me ? .Do hope your mum finds a bit of solace in speaking to others, she should have a support nurse .what area are you from? Good luck, remain positive  and strong xx

Hi,

Firstly, please reassure your Mum that’s whilst it’s devastating to be told you have Multiple Myeloma, it can be treated and there are many different drug regimes available which allow you to live your life with the condition.

I also know the effect and worry that it also has on family and friends when someone is diagnosed.

There is lots of support available on sites like this and Myeloma Uk.

I was diagnosed in 2019 & had a stem cell transplant (sct), in 2022.

Before the transplant you would normally have 6 months of chemotherapy, (injections in stomach), to bring the para protein levels down.

The sct isn’t pleasant but worth it for the benefits.

After my sct I have been in remission since and just been taken off maintenance chemo, (oral drug), which I was on for two years. My consultant is not going to to put me on any other treatment and will monitor my bloods monthly at the moment.

No body knows when their Myeloma may return.

I have days when the fatigue affects me but I try to live my life to the full, whilst making memories with loved ones.

Try to stay positive, which will make the journey easier.

Sending best wishes to your Mum, you and your family.

xx