Immunotherapy treatment

I’m classed as stage 3 B having had secondary melanoma in the groin.  No other cancer in lymph nodes or surrounding tissue thankfully. I was offered immunotherapy treatment but given the possible side effects, U decided to pot for observation and regular scans.  Spoke with my GP who wasn’t happy to hear that I wasn’t going to have the treatment. I was told that if the cancer did come back, it could metastasise itself onto numerous organs. I changed my mind on hearing this. Had my first treatment over a week ago abd have been perfectly fine since. I also met a lady who was having her final treatment and had never had any side effects that concerned her. This was the first time I’d met someone who has the same surgery as myself and was having the same treatment Pembrolizamab. They call it PEMBRO.  

Sometimes we over think and worry too much and that’s understandable too. I can’t believe how good I feel now that I’ve started the treatment and know I’ve done the right thing for myself.  
Immunotherapy seems to be the new hope for treatments for all types of cancers and the feedback from people I know is excellent and SO encouraging for all of us. 

it’s not easy but if we could all try to stay positive and believe that we will do well, I honestly think that helps with our results. 
Wishing everyone on this journey the very best of good luck. Xx

Parents
  • I have been offered immunotherapy, Pembrolizumab and have been trying to decide whether or not to go ahead. Side effects seem to quite nasty. However having  the comments here I now believe I will accept it as most people here seem to think it is beneficial. Thankyou.

  • Hi Kingsbridge,

    Apologies, only saw your post earlier when we were out for a meal at our daughter’s home and only now home. 
    When I read your message, it made me think how I was exactly the same as you not that long ago. I was diagnosed with secondary aggressive melanoma in April. Never had primaries so extremely shocked. Had 9 lymph nodes removed along with the melanoma in June. Results excellent but offered treatment. Visited an Oncologist who gave me the facts. As I am now cancer free and didn’t have any signs of cancer from the pathology report, it was suggested that I go for immunotherapy Incase there may be any micro cancer blood cells lurking anywhere. I was given the success rate and all the hellish side effects that COULD go along with the treatment.  Within minutes,my mind was made up and I thanked him and refused his offer. I went home deliriously happy. I could now move on with my life and put everything behind me. Hallelujah, thank the Lord. A couple of days later my GP rang me to catch up and when I told him my decision, I knew immediately by his voice that he was absolutely horrified. I was told that if the melanoma metastasised , it could do so in more that one place. I felt a chill run through my body and knew that God above was I watching over me. I immediately messaged the lead on nurse, met with the Oncologist a few days later and started on the treatment that week. You can imagine that I was still uncertain about these side effects but yet again, Gid was watching over me. A lady beside me was having her final treatment. She’d had pretty much the same operation as I’d had. Couldn’t believe my ears when she told us that she’d never really had any side effects other that skin discolouration and a bit of itching. Husband and she had just returned from holidaying in Rhodes. After they’d left to go and enjoy an Indian meal. My husband and I looked at one another with joy and thankfulness.  You’ll have guessed by now that I am a Christian with a very strong faith and knowing that God is watching over me is a great comfort.  I never worry ( sounds ridiculous) I am happy and at peace and thankful that I’m able to have preventative treatment and am receiving amazing care from all the physicians I’ve come into contact with. 
    The treatment I’m having is the same as the one you are planning to get. 
    If you happen to be taking Omeprazoke for did reply, stop and if you need something, doctor will prescribe Pepto Aniseed / betterment liquid. 
    It’s advised that you do your best to have a healthy gut so drink probiotics etc.,   

    Please forgive this lengthy message but I would wish you the very best for the future and I believe that our diet is vital along with our treatment   Give it your very best shot and stay positive if you can  I will pray for you as so many people have been praying for me  

    Best wishes, Rosemary. 

Reply
  • Hi Kingsbridge,

    Apologies, only saw your post earlier when we were out for a meal at our daughter’s home and only now home. 
    When I read your message, it made me think how I was exactly the same as you not that long ago. I was diagnosed with secondary aggressive melanoma in April. Never had primaries so extremely shocked. Had 9 lymph nodes removed along with the melanoma in June. Results excellent but offered treatment. Visited an Oncologist who gave me the facts. As I am now cancer free and didn’t have any signs of cancer from the pathology report, it was suggested that I go for immunotherapy Incase there may be any micro cancer blood cells lurking anywhere. I was given the success rate and all the hellish side effects that COULD go along with the treatment.  Within minutes,my mind was made up and I thanked him and refused his offer. I went home deliriously happy. I could now move on with my life and put everything behind me. Hallelujah, thank the Lord. A couple of days later my GP rang me to catch up and when I told him my decision, I knew immediately by his voice that he was absolutely horrified. I was told that if the melanoma metastasised , it could do so in more that one place. I felt a chill run through my body and knew that God above was I watching over me. I immediately messaged the lead on nurse, met with the Oncologist a few days later and started on the treatment that week. You can imagine that I was still uncertain about these side effects but yet again, Gid was watching over me. A lady beside me was having her final treatment. She’d had pretty much the same operation as I’d had. Couldn’t believe my ears when she told us that she’d never really had any side effects other that skin discolouration and a bit of itching. Husband and she had just returned from holidaying in Rhodes. After they’d left to go and enjoy an Indian meal. My husband and I looked at one another with joy and thankfulness.  You’ll have guessed by now that I am a Christian with a very strong faith and knowing that God is watching over me is a great comfort.  I never worry ( sounds ridiculous) I am happy and at peace and thankful that I’m able to have preventative treatment and am receiving amazing care from all the physicians I’ve come into contact with. 
    The treatment I’m having is the same as the one you are planning to get. 
    If you happen to be taking Omeprazoke for did reply, stop and if you need something, doctor will prescribe Pepto Aniseed / betterment liquid. 
    It’s advised that you do your best to have a healthy gut so drink probiotics etc.,   

    Please forgive this lengthy message but I would wish you the very best for the future and I believe that our diet is vital along with our treatment   Give it your very best shot and stay positive if you can  I will pray for you as so many people have been praying for me  

    Best wishes, Rosemary. 

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