Immunotherapy treatment

I’m classed as stage 3 B having had secondary melanoma in the groin.  No other cancer in lymph nodes or surrounding tissue thankfully. I was offered immunotherapy treatment but given the possible side effects, U decided to pot for observation and regular scans.  Spoke with my GP who wasn’t happy to hear that I wasn’t going to have the treatment. I was told that if the cancer did come back, it could metastasise itself onto numerous organs. I changed my mind on hearing this. Had my first treatment over a week ago abd have been perfectly fine since. I also met a lady who was having her final treatment and had never had any side effects that concerned her. This was the first time I’d met someone who has the same surgery as myself and was having the same treatment Pembrolizamab. They call it PEMBRO.  

Sometimes we over think and worry too much and that’s understandable too. I can’t believe how good I feel now that I’ve started the treatment and know I’ve done the right thing for myself.  
Immunotherapy seems to be the new hope for treatments for all types of cancers and the feedback from people I know is excellent and SO encouraging for all of us. 

it’s not easy but if we could all try to stay positive and believe that we will do well, I honestly think that helps with our results. 
Wishing everyone on this journey the very best of good luck. Xx

Parents
  • In September I had a radical kidney nephrectomy (kidney removed) the margins were clear, but it’s 9 out of 11 on the Leiberwych scale, however you spell that! I’m due to have a full scan on Monday, as previous scan showed something on my chest, the doctors didn’t think it was cancer, looked like inflammation. Hopefully the scan on Monday will be clear. My immunotherapy will also be Pembrolizumab, Pembro. Not looking forward to having it, but glad you haven’t experienced horrible side effects. I feel glad I’m going to have this further treatment, as it will hopefully protect us from cancer returning. Following a visit to hospital on 1st November I received a follow up letter on Mychart. The doctor explained how clever cancer is, it tries to fool the immune system that it’s not harmful, Pembro breaks that cover down, so our own immune system can destroy it. That’s not the actual wording but it was good to read. Good luck to everyone going through this, sending hugs xx

  • Like you, scans showed up various concerns and I was sent to see a gynaecologist and then a urologist.  Thankfully, nothing sinister was wrong. Then sent for a PET scan, something showed up in my thyroid. I had to have a biopsy ( no big deal, local anaesthetic). again, I was fine. Such a massive relief but my son in law said I was lucky to be getting a top class MOT.   Looking at it like that, I saw te positive side. 

    Treatment.  Initially, I refused the treatment but my GP left me in no doubt that I’d be making a massive mistake not taking it. I returned to the hospital and had another very lengthy discussion with my oncologist. I’m so thankful that my mind was changed. I met a lady who was just completing her full treatment and she told me she’d been fine. A few minor hiccups along the way but nothing to write home about. 
    Please stay positive.  Go on a healthy gut diet. Seeds on your breakfast cereal or anything else. Probiotics. Lots of fruit and vegetables. Steer clear of white bread and white rice. Brown bread and brown rice are better for us. 
    All the best. You’ll be fine   We must be thankful that finally there’s hope for all of us.  

    I’ve been a volunteer for Cancer Research UK for many years and I’ve seen and heard of all advancement's that are saving the lives of so many of us. It might help if you offered to help out in one of the shops or by donating things you no longer need All this money is used research and more. 

    We must all try to do our bit to fight for our lives. Xx

Reply
  • Like you, scans showed up various concerns and I was sent to see a gynaecologist and then a urologist.  Thankfully, nothing sinister was wrong. Then sent for a PET scan, something showed up in my thyroid. I had to have a biopsy ( no big deal, local anaesthetic). again, I was fine. Such a massive relief but my son in law said I was lucky to be getting a top class MOT.   Looking at it like that, I saw te positive side. 

    Treatment.  Initially, I refused the treatment but my GP left me in no doubt that I’d be making a massive mistake not taking it. I returned to the hospital and had another very lengthy discussion with my oncologist. I’m so thankful that my mind was changed. I met a lady who was just completing her full treatment and she told me she’d been fine. A few minor hiccups along the way but nothing to write home about. 
    Please stay positive.  Go on a healthy gut diet. Seeds on your breakfast cereal or anything else. Probiotics. Lots of fruit and vegetables. Steer clear of white bread and white rice. Brown bread and brown rice are better for us. 
    All the best. You’ll be fine   We must be thankful that finally there’s hope for all of us.  

    I’ve been a volunteer for Cancer Research UK for many years and I’ve seen and heard of all advancement's that are saving the lives of so many of us. It might help if you offered to help out in one of the shops or by donating things you no longer need All this money is used research and more. 

    We must all try to do our bit to fight for our lives. Xx

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