Hi - looking for other with PMP (pseudomyxoma peritonei)

Hi everyone, thanks for accepting me onto this chat group. Is there any one on here with PMP, pseudomyxoma peritonei?

  • I am not unhappy with the 2 cancers, I get on with my day. I see how I feel in the morning (I retired 1 year ago aged 66) and then plan my day. Sometimes I don’t even get properly dressed my I wear my snuggle snoodie  and track suit, other days I am happy to go out and do different things.  I did have a bucket list 1 year ago, and have slowly completed it to what I find is important to me.  Although, I hate friends and family saying to me one day at a time, it is the best advice really.  Funny thing thing is when I am in pain, I never know what cancer to blame  .  Please plan your day as you feel, not around any one else.  Even 2 years on I still don’t know where to begin, but that is life and I accept it x

  • Hi

    I had my MOAS in July 2022. 
    The tumours are still there and growing, but thankfully they are low risk and slow growing. 

    I had my gall bladder, appendix, spleen, large bowel, 1/2 stomach,omentum and peritoneum removed. 

    But I am so thankful that I can still live a normal life

  • Offline in reply to Si59

    Hi how you feeling now ? My SIL has recently been diagnosed with PMP so we just trying to navigate this. Massive operation then now chemo for 6 months has anyone else had chemo do you know xx