I have myeliofibrosis

Hi, I live in Wales and I was first diagnosed in 2005, when I had my daughter.   I’m currently looking for going for a stem cell transplant but got to jump through a few hooped first

  • Hello Stephie-1976 and welcome to the forum. 

    I'm sorry to hear that you're currently facing the prospect of a stem cell transplant but at the moment you've got a few hoops to jump through first. I'm sure that there are times when this has been quite worrying for you. 

    I'm not sure that we have any other members currently active on the forum who are living with a diagnosis of myelofibrosis but you can read through some of the other posts about this condition using the forum search function at the top of the page to look for the word myelofibrosis. Hopefully that way you will be able to connect with others who have been through this treatment. 

    I hope that you're being well supported by your health care team during this process. If it would help to talk with one of our nurses at any point you're welcome to give them a call. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that you're able to complete the necessary steps to move forward with your transplant in the near future. Do keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator