Advocacy: who can speak for us?

A person close to me is coming up against a cancer service that is proposing to treat the illness (in their tried and tested ways) rather than treat the patient. A recent scan seems to have provided confirmation bias to a pre-scan predicted and preferred course of action, but they refuse to show her the scan and talk it through with her (she has some medical training so is familiar with these images). They are pushing more scans (more radiation), and another chemo course. She asks about a surgical alternative but is facing a brick wall. The fear is she is being labelled as a “difficult patient” who does not deserve their efforts to save her life. Without any new test her stage 3 status suddenly became stage 4, and she only found that out through the radiologist. Is there a service which provides an informed advocate who speaks the language of the specialist clinicians to attend appointments with the patient and ensure that a meaningful consultation takes place?

  • Good morning SamUL

    I'm sorry to hear that a person close to you is struggling with a cancer diagnosis at the moment. It's understandably a worrying time and natural that you both want to ensure all available avenues are being explored. 

    In the first instance, I'd suggest your friend contact the hospital PALS service. It's part of their role to help resolve concerns or problems when you're using the NHS. It might also be that your friend wants to consider asking for s second opinion on their diagnosis. You can read more about how to get a second opinion on our website. 

    If it would help to talk with one of our nurses for some advice and support you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    I do hope that your friend is able to access the support they need with this diagnosis. 

    Best wishes, 
    Jenn
    Cancer Chat moderator