Yes: this has been an ever-worrying issue for me since about February. It's been in the national press three times now. Rumours of another two years of issues. I switched from my local "computer says no" pharmacy in favour of Boots, who seem a bit more on it. Recommendation seems to be to stay two weeks ahead of your own demand, but I'd say more like four. I've been trying to take fewer capsules to make them last, but the result isn't very pleasant.

The BBC has even started to admit that it could be something to do with Brexit, which must mean that things are getting bad.

'I drive miles in search of life-changing medicine' https://www.bbc.com/news/articles/cd16dd735x3o

https://www.bbc.co.uk/news/articles/cy737x4rry1o

www.theguardian.com/.../pharmacist-uk-drug-shortage-patient-medication

Hi Luke. Thank you for replying to me.

My pharmacist had mentioned that the supply issues might not be resolved until next year, which was worrying enough, but two years is very scary.

I’ve also had to reduce how many I take and I’m eating less too, which isn’t good as I’m already underweight but I don’t want to run out.

I agree with you about Boots. They were the ones able to get me Pancrex powder, which isn’t pleasant to take but it much better than nothing.

I hope you are doing okay throughout all this.

It’s all a bit frightening, isn’t it? I got my last MP to raise it in Parliament. Need to do that again, I think. The response was almost verbatim what they read to me in Boots, but that included the 2026 warning (obviously they don’t want to panic us). I might write to the new Health Secretary as well. We need to keep bringing it up until it’s resolved, I think. I also eat a lot of fruit, as you don’t need to take Creon with, say, an apple in the middle of the day. Grapes, pineapple. All lovely snacks! Hope you’re doing ok too. It’s a source of constant anxiety, obviously: I just try and stay a few weeks ahead and not to panic. 

You’re right, we should contact our MPs (MSPs in my case) so that they know how serious this is.

Yes, some fruit is a great way to help with this. I also saw that Pancreatic Cancer UK had suggested a meal plan to minimise the amount of Creon to if it gets bad:

https://www.pancreaticcancer.org.uk/information/managing-symptoms-and-side-effects/diet-and-pancreatic-cancer/pancreatic-enzyme-replacement-therapy-pert/how-to-deal-with-creon-nutrizym-or-pancrex-supply-issues/

Thank you again 

Thanks for this. I saw that this was reported by the BBC again this week - I think it's important to keep the subject active, both here and north of the border. In my letter to MP, I asked them to not stop going on about this until it was resolved. I wrote to Wes Streeting too. I also found a bit more information online (it seems that the emergency is until November, for now, and then by 2026 it'll all magically be fine...!):

I have a Pancreas NET and Sugeon can’t operate - had awful bowel symptoms with Creon, doseage was 3x25000 with main meals  and 1x 25000 at 3 snacks but couldn’t cope so reduced them to 1 x25000 per meal. Still feel ok.

Shotrtage of Creon from Pharmacy locally but Dr has sourced another Brand available for me next week. My Side effect of my NET is Diabetes increased by the 4 weekly Lanreotide injection, it was controlled by compliant diet. Struggling with this as not injecting insulin yet.

I have a Pancreas NET and Sugeon can’t operate - had awful bowel symptoms with Creon, doseage was 3x25000 with main meals  and 1x 25000 at 3 snacks but couldn’t cope so reduced them to 1 x25000 per meal. Still feel ok.

Shotrtage of Creon from Pharmacy locally but Dr has sourced another Brand available for me next week. My Side effect of my NET is Diabetes increased by the 4 weekly Lanreotide injection, it was controlled by compliant diet. Struggling with this as not injecting insulin yet.