Cancer Research UK main site
  • Replies 9 replies
  • Views 1961 views
  • Users 0 members are here

Carcinoid Tumour

Susie0911
Offline

Does anyone else here have a carcinoid tumour and how do you cope with it?

Parents
  • Offline

    Hi Steph. Yes I do. I started off with a small bowel cancer tumour thatbi knew nothing about and was then diagnosed with Neuroendocrine tumours which cover 97% of my liver so unable to operate, and I also have carcinoid syndrome which I believe come hand in hand. I have just finished 4 rounds of nuclear treatment PRRT whichni have to say feels like it nearly killed me, this was last Thursday and started in March 24. What's your story and hopefully we can help each other as this sh!! Is rare x

Reply
  • Offline

    Hi Steph. Yes I do. I started off with a small bowel cancer tumour thatbi knew nothing about and was then diagnosed with Neuroendocrine tumours which cover 97% of my liver so unable to operate, and I also have carcinoid syndrome which I believe come hand in hand. I have just finished 4 rounds of nuclear treatment PRRT whichni have to say feels like it nearly killed me, this was last Thursday and started in March 24. What's your story and hopefully we can help each other as this sh!! Is rare x

Children
No Data

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.