Mistakes in breast cancer treatment - losing faith

Originally, back in December, I was diagnosed with an early breast cancer, 22mm, no lymph nodes involved and hormone receptor positive. 7 months down the line, I've had 3 operations, weeks and weeks of waiting for pathology results and follow up appointments, and the tumour was 1 of 3 found so far, plus my lymph nodes are involved. All that has been removed now and I was finally signed off for oncology to start their part. But then in a mdt meeting, the radiologist asked about the other area that was investigated. My surgeon didn't know anything about another area. Radiologist said it was identified in original scan in December! Surgeon said she'd already operated on me 3 times and this should have been mentioned before. 

Long story short...Instead of starting my chemo, I'm now waiting for another diagnostic scan and biopsy for potentially a new cancer. 

I'm 46 with a full time job and 3 kids. This is starting to take its toll on me now. This new area was identified 7 months ago so if it is cancer, it could be bigger now...it could have spread. I'm terrified. But more importantly I've lost faith in my team. Everything they've told me keeps changing. When I ring up, I'm told different info by different people. I feel like I'm being fobbed off because they know they've messed up. 

Is this negligence? How should I deal with this?

Thank you 

  • Hi Bluesatsuma,

    I am so sorry to hear about all that you have been through. I had a similar problem with my first breast care team too, which resulted in my having a second cancer in the same breast, 11 months after surgery. At that stage I changed to a new care team in a different hospital. The treatment I received there was just amazing and I have never looked back. This was all 15 years ago. I did feel very upset and angry at the time and would have had redress to raise a claim. I worked in healthcare myself for 52 years and know that, although we strive to do our level best for patients, medicine is not an exact science and mistakes can be made.

    How you deal with this is up to you. My thoughts were that I still needed treatment, as do you and I didn't want any claim to jeopardise any future care that I might have. I sincerely hope that you reach the right decision for you, as this is important. Try not to let this oversight eat away at you and move forward with your treatment. You really do need a positive attitude to fight this disease and you can't have that, when you are feeling so angry. You are entitled to request a change of team or a second opinion if this would help your recovery, although, this may entail travelling to a hospital further away.

    I can fully appreciate your disappointment and hope that your scan and biopsy come through soon and that there is some good news on the horizon.

    Please keep in touch and let us know how you intend to proceed and remember that we are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you Jolamine.  I don't want to make a claim, just feel very aggrieved really that this has been overlooked and for 7 months it has bee known about. Hopefully the biopsy will show it is not to worry about but as pathology waits are 6 weeks in my area, it adds another lengthy wait to start chemo. I will probably be 9 months post diagnosis before my chemo starts. It is do frustrating as a friend of mine has been diagnosed, operated on and had radiotherapy in the time it has taken me to get to where I am, which is barely better off than I was in December at diagnosis. 

    I think as you say though, see what my biopsy brings. But I will be insisting that they are thorough this time and I remind them at every appointment that I am very fed up. 

    Fingers crossed for some speedy actions now!

    Hope you are well. 

    Thank you x