Side effects

Hello my name is sue and iv been diagnosed with cml for 5 years now.im just really struggling with the side effects of the oral chemo drugs that i take daily. I don’t want to change the drug that im taking as im responding well to this drug and have had 4 failures with other tki’s.i do have oastioarthritis as well and my joints really are painful im having very bad pain in my feet which is not helping my mobility.sometimes it’s a struggle to get through the days,but i dont like to moan as these drugs are keeping me alive! 

  • Hello Cremona

    I'm sorry to hear that you're struggling with some side effects of the treatment you've been on for CML over the last few years. It's understandable that you feel you don't want to moan about the problems that you're having as it sounds like the medication is otherwise helping to keep you stable. 

    However, I'd really encourage you to talk with your clinical nurse specialist, Consultant, or GP about the problems that you're having. It may be that there are other options they can add to your drug regime to help better manage the problems that you're living with and further improve your daily quality of life. 

    If you think it might help to talk things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to offer any advice, information, and support they can. 

    I hope that you're able to talk with your care team soon Cremona and that they can improve things for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator