Paying for Enhertu in England

Hi everyone, my husband has stage 4 small bowel cancer and he is currently getting enhertu as his fourth line of treatment, which (touch wood) seems to be having some impact. Previous treatment included trastuzamab which worked until it didn’t.
Enhertu isn’t available on the NHS for small bowel cancer and so we are self funding approx £9,000 every three weeks for this treatment at a hospital in Chelsea. It is obviously unaffordable and while friends and family have helped so far this isn’t something we can pay for. 
My question is if this price is what others might be paying - is this the going rate? We have no idea if different trusts charge a different amount because the accounts people are so cagey about the price. If there’s any way we can go somewhere and get this a little cheaper it’s definitely worth us looking into. 
Any insight is welcomed. 

  • Hello Peacelily24

    We are really sorry to hear of your situation. It's understandably a difficult time for you both. 

    The best way to get information about the cost of private medical treatments is to visit private hospitals' websites and get in touch with them. All hospitals offering private treatment should be able to give you an upfront costing. Unfortunately the cost of this type of treatment is extremely expensive as you have discovered and an average cost of £10,000 a month is not unheard of. The cost of the drug itself will be set by the manufacturer but the actual cost of the treatment may vary depending where you go.

    Private healthcare costs in the UK are based on several factors including hospital location so you can expect to pay 10-20% more for treatment in London for example, so it may be worth exploring hospitals in other areas of the UK. You can search for hospitals across the UK on the Private Health Information Network website. 

    I’m sorry we can’t offer any more insight but I would suggest contacting the charity Bowel Cancer UK. They have an online forum similar to Cancer Chat where you might find that someone else in a similar position can offer you some helpful advice.           

    I really hope your husband is able to get the treatment he needs. 

    Best wishes, 
    Jenn
    Cancer Chat moderator